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THE GUIDE: Arizona Resources for the Disabilities Community
The Guide: Resources for the Disabilities Community is designed to assist people who are disabled and their family and friends to find services and resources to improve their lives. We hope you find it useful.
The Guide is a work-in-progress. If you know of a resource that would be of interest to the disabilities community, please e-mail it to gwilson@heimberglaw.com.
Many national organizations have local chapters; you may find this information on the web sites listed in The Guide; if not, ask for contact information when you call or e-mail the national organization.
If someone you know would like a copy of The Guide, please refer them to our web site, www.heimberglaw.com, to download a copy.
The Heimberg Law firm has long championed the most vulnerable members of our society -- those who have been severely, permanently and wrongly injured. Steve (who is a doctor as well as a lawyer), leads a legal team dedicated to battling wrongdoers, whether HMOs, hospitals, nursing homes, medical personnel, insurance companies, pharmaceutical companies, reckless drivers, manufacturers of defective or dangerous products, or others.
Steve's commitment to the disabilities community extends past the walls of the courtroom and into their personal lives through their support of Shane's Inspiration, WYNGS and other charitable organizations.
In essence, Heimberg Law Group, LLP aggressively and ethically pursues the best possible lives for those who come to them for help.
ACCESSIBILITY
About Care, Inc.
support services for the homebound: transportation, shopping and errands, minor repairs, and more
(480) 802-2331 www.aboutcare.orgAmericans With Disabilities Act Information Line
(800) 514 -0301 www.ada.gov
DO-IT
accessible web design, internetworking, distance learning and IT
www.washington.eduRehabEngineer
assistive technology resources; also a job and internship job board
www.rehabengineer.comTetra Society of North America
volunteer engineers, designers, technicians, health care providers and people with disabilities come together to create customized assistive devices not found in the marketplace
(877) 688-8762 www.tetrasociety.orgThe Access Board
(800) 872-2253 www.access-board.gov
Workshop Solutions
volunteer engineers, technicians, inventors and workshop enthusiasts make assistive devices not found in the marketplace.
www.workshopsolutions.com
ADOPTION
Aid to Adoption of Special Kids
(602) 254-2275 www.aask-az.org
National Adoption Assistance Training Resource & Information Network
information on adoption subsidies for those adopting children with special needs
(800) 470-6665 adopting.adoption.comNational Adoption Center
provides adoption opportunities for children with special needs, as well as an online photolisting of children and a free booklet of employers providing adoption benefits
(800) TO-ADOPT www.adopt.orgNational Adoption Foundation
provides loans for adoption expenses
(203) 791-3811 www.nafadopt.orgNational Adoption Information Clearinghouse
information on adoptive parent support groups, adoption exchanges and photolisting services, state adoption specialists, public and private agencies, and bibliography of thousands of articles
(888) 251-0075 www.adoption.orgNorth American Council on Adoptable Children
(651) 644-9840 www.nacac.org
AGING
Arizona Association of Homes and Housing for the Aging
a nonprofit organization that provides referrals to member nursing facilities, assisted living facilities, independent living facilities
(602) 230-0026 www.azaha.orgClearinghouse on Aging and Developmental Disabilites
Rehabilitation Research & Training Center on Aging with a Disability
(562) 401-7402 webapps.myregisteredsite.com
ANIMAL PROGRAMS
Canine Companions for Independence
(800) 572-BARK www.cci.org
Delta Society
information about agencies that train and supply service dogs
(800) 869-6898 www.deltasociety.orgDogs for the Deaf
(541) 826-9220 www.dogsforthedeaf.org
Eye Dog Foundation for the Blind
(661) 831-1333 www.eyedogfoundation.org
Helping Hands - service monkeys
(617) 787-4419 www.monkeyhelpers.org
Top Dog
teaches people with physical disabilities how to train their own dogs
(888) 257-6790 www.topdogusa.org
ARTS
Disability History Museum
Disabled Drummers Association
nonprofit serving amateurs and professional drummers with disabilities
(305) 621-9022 www.disableddrummers.orgInSight Cinema
big screen movies made accessible to audiences who are deaf and hard-of-hearing at mainstream theatres
www.insightcinema.orgNational Arts & Disability Center
(310) 794-1141 nadc.ucla.edu
The Association of Mouth & Foot Painting Artists
VSA Arts
(916) 277-6747 www.vsasacramento.org
ASSISTIVE TECHNOLOGY
ABF Service - equipment for those who are disabled
(818) 846-1705 losangeles.localtiger.com
ABLEDATA
(800) 227-0216 www.abledata.com
Alliance for Technology Access
(707) 778-3011 www.ataccess.org
Arizona Center for the Blind and Visually Impaired
transportation coordinated with community resources, assistive technology training, community education, and more
(602) 273-7411 www.acbvi.orgAssistive Technology Information & Referral
(800) 390-2699 www.atnet.org
AssistiveTech.net
(800) 726-9119 assistivetech.net
AT508
Internet TV for assistive technology
www.at508.comCenter for Assistive Technology
(800) 628-2281 www.cat.buffalo.edu
Computer Resources for People with Disabilities: A Guide to Assistive Technologies, Disability Resou
information for, by, and about people with disabilities
(800) 272-7713 www.healthcare.uiowa.eduFamily Center on Technology & Disability
(202) 884-8068 www.fctd.info
NanoPac.Inc.
online store providing services & equipment
(800) 580.6086 www.nanopac.comNational Registry of Rehabilitation Suppliers
(512) 267-6832 www.nrrts.org
Rehabtool.com
(281) 531-6106 www.rehabtool.com
BEREAVEMENT SUPPORT
Center for Loss in Multiple Births
(907) 222-5321 www.climb-support.org
Our House
grief support groups, counseling for individuals, schools and medical professionals
(818) 222-3344 www.ourhouse-grief.orgThe Compassionate Friends
(877) 969-0010 www.compassionatefriends.org
CAREGIVERS
About Care, Inc.
support services for the homebound, such as transportation, shopping and errands, minor repairs, and more
(480) 802-2331 www.aboutcare.orgARISE, Inc.
habilitation, family services, early intervention, group homes, day programs for disabled individuals
(480) 497-1889 www.riseinc.netCaringRoad Support Network
online community of family caregivers
www.caringroad.orgDisabled & Alone
life services for people with disabilities
(800) 995-0066 www.disabledandalone.orgEmpowering Caregivers
chats, forums, emotional and spiritual support, information
www.care-givers.comFamily Care Agency
respite care provided to people with mental and/or physical disabilities, ages kindergarten to 12 and an adult unit
(818) 345-2950 www.homehealthcareagencies.comIn-Home Supportive Services
(888) 344-4477 www.cdss.ca.gov
LivHome
in-home support services, including transportation, personal care assistance, medication reminders, care for wheelchair-dependent or bed-bound
(323) 933-5880 www.livhome.comNational Association for Home Care
home care and hospice-related information
(202) 547-7424 www.nahc.orgNational Family Caregivers Association
support and information on all topics of interest to family caregivers
(800) 896-3650 www.nfcacares.orgWell Spouse Association
support for spousal caregivers
(800) 838-0879 www.wellspouse.com
CONSUMER ADVOCACY
A Consumer Guide to Handling Disputes with Your Employer or Private Health Plan, 2005 Update
(publication - free)
www.kff.orgADA Watch!
alert system for threats to the civil rights protections of those with disabilities
(202) 661-4722 www.adawatch.orgAdult Protective Services
(888) 202-4248 www.dss.cahwnet.gov
Advocacy Resources
American Association of People with Disabilities
(800) 840-8844 www.aapd.com
American Board of Medical Specialties
verifies board certification in the U.S. for 24 approved medical certification boards
(888) 327-4236 www.abms.orgArizona Attorney General
consumer protection & advocacy
(602) 542-5025 www.azag.govArizona Consumers Council
(602) 266-3913 www.azconsumerscouncil.org
Arizona Dental Association
free referrals to reduce dental services for individuals with limited resources or those on public assistance
(480) 344-5777 www.azda.orgArizona Department of Administration- Human Resources Division
recruit qualified applicants for state employment
(602) 542-5482 www.hr.state.az.usArizona Department of Economic Security, Adult Protective Services
receive and evaluate reported incidents of abuse, neglect, exploitation of vulnerable or incapaciatated adults and offer appropriate services; hotline available 24 hours
(877) SOS-ADULT www.azdes.govArizona Department of Economic Security, Child Care Administration
(602) 244-2678 www.azdes.gov
Arizona Department of Economic Security, Division of Benefits and Medical Eligibility
temporary cash assistance to needy dependent children, food stamps, general assistance, medican assistance, temporary assistance for needy families, two parent emplolyment program
(602) 542-9935 www.azdes.govArizona Department of Economic Security, Division of Child Protective Services
child abuse hotline, accept and investigate reports of abuse, neglect, dependency, and abandonment of children
(888) SOS-CHILD www.azdes.govArizona Department of Economic Security, Division of Child Support Enforcement
locate absent parents, establish paternity, establish and enforce orders, and collect child support payments
(602) 252-4045 www.azdes.govArizona Department of Economic Security, Division of Developmental Disabilities
has developmental disabilities programs and provides services for individuals with developmental disabilities based on assessed need, such as attendant care, day treatment and training, employment services, etc.
(602) 542-0419 www.azdes.govCalifornia Advocates for Nursing Home Reform
(800) 474-1116 www.canhr.org
California Board of Guide Dogs for the Blind
(916) 324-9328 www.guidedogboard.ca.gov
California Board of Pharmacy
(916) 445-5014 www.pharmacy.ca.gov
California Board of Physical Therapy
(916) 561-8200 ptbc.ca.gov
California Board of Registered Nursing
(800) 838-6828 www.rn.ca.gov
California Board of Respiratory Care
(916) 323-9983 www.rcb.ca.gov
California Board of Speech & Audiology
(916) 263-2666 www.slpab.ca.gov
California Board of Vocational Nurses & Psychiatric Technicians
(916) 263-7800 www.bvnpt.ca.gov
California Department of Insurance
(800) 927-4357 www.insurance.ca.gov
California Department of Rehabilitation/Greater L.A.
(213) 736-3904 www.rehab.cahwnet.gov
California Department of Social Services
licenses board and care homes
(818) 596-4334 www.ccld.ca.govCalifornia Nursing Home Administration Program
(916) 552-8780 www.cdph.ca.gov
California Online Voter Registration Form
Center for Health Improvement
(916) 930-9200 www.chipolicy.org
Center for Justice & Advocacy
(212) 267-2801 www.centerjd.org
Center for the Study & Advancement of Disability Policy
(202) 783-5111 www.disabilitypolicycenter.org
Consumer's Union
(415) 431-6747 www.consumersunion.org
Disability Rights Education Defense Fund
(510) 644-2555 www.dredf.org
Food & Drug Administration
information on medicines and equipment
(888) 463-6332 www.fda.govHeimberg Law Group, LLP
The Heimberg Law Group "Protects Your Rights from Their Wrongs" by championing the cause of victims of medical malpractice, life-altering injuries, elder abuse and health fraud, and those injured by medical products and pharmaceuticals
(800) 425-5557 www.heimberglaw.comLos Angeles City Department of Disability Programs
(213) 485-6334 disability.lacity.org
Lupus Foundation of America, Arizona Chapter
telephone hotline, education seminars, health fairs and community gatherings, and support group
(602) 870-7622 www.lupus.orgMake A Difference
provide volunteer opportunities in areas of people with disabilities
(602) 973-2212 handsonphoenix.orgMedical Board of California
check your doctor's or midwife's record
(916) 263-2382 www.medbd.ca.govOffice of Fair Housing & Equal Opportunity
investigates housing discrimination & civil rights matters
(213) 894-8000 www.hud.govPhoenix State Health Insurance Assistance Program
provide education, outreach, counseling, and information to Medicare beneficiaries, their families and caregivers
(800) 432-4040 www.azdes.govQuality Check
report card on hospitals, labs and other medical facilities
(630) 792-5000 www.qualitycheck.orgThe Foundation for Taxpayer & Consumer Rights
(310) 392-0522 www.consumerwatchdog.org
U.S. Dept. of Health & Human Services
Inspector General's hotline for complaints about fraud regarding health & human services; primarily for Medicare & Medi-Cal fraud
(800) 447-8477 www.hhs.gov
EARLY INTERVENTION RESOURCES
Advocates Against Adolescent Suicide
individual, family, marriage counseling
(480) 409-2376 therapists.psychologytoday.comARISE, Inc.
habilitation, family services, early intervention, group homes, day programs for disabled individuals
(480) 497-1889 www.riseinc.netArizona Department of Economic Security, Arizona Early Intervention Program
early intervention and assessment for children with disabilities age 0-36 months
(602) 532-9960 www.azdes.govBlind Children's Center
school and home-based support services for children with visual impairments, birth through preschool
(323) 664-2153 www.blindchildrenscenter.orgCenter for Prevention & Early Intervention
(800) 869-4337 www.wested.org
Drew Child Development Corp.
for children with special needs, birth to 3 years
(323) 249-2598 www.drewcdc.orgEarly Start/Early Star at Home
infants & toddlers
(916) 654-2773 www.dds.ca.govEisner Pediatric & Family Medical Center
day care center for infants & toddlers with developmental disabilities
(213) 747-5542 www.pedcenter.orgExceptional Children's Foundation
birth to 3 years of age
(323) 735-1424 www.ecf.netFamily Resource Centers Network of California
Infant Family Services Program
birth to 3 years old
(562) 438-8999 long-beach.enquira.comLIFE, Inc
early childhood special education, child development services, and therapies
(480) 222-4123 www.lifeaz.orgMarc Center of Mesa
home-based early intervention services, work adjustment, job placement, community living services for adults with disabilities
(480) 969-3800 www.marccenter.comPathways Awareness Program
(800) 955-CHILD www.pathwaysawareness.org
EDUCATION RESOURCES
ACCEL
academic and therapeutic school for children and adults with disabilities
(602) 995-7366 www.accel.orgArizona Coalition on Adolescent Pregnancy
organizes community and individual educational programs and publications about teen pregnancy
(602) 265-4337 www.azteenpregnancy.orgCalifornia School for the Deaf/Riverside
day school and residential for those age 3 to 21 and their families
(951) 782-6500 www.csdf.k12.ca.usCoalition of Special Education Parents
for parents of children receiving special education services under IDEA in preschool through high school
groups.yahoo.comCouncil for American Private Education
(301) 916-8460 www.capenet.org
Educational Resources Information Center
searchable Internet database
(800) LET-ERIC www.eric.ed.govHeath Resource Center
clearinghouse on higher education for individuals with disabilities
(800) 544-3284 www.heath.gwu.eduHomeschool.com
Kids on the Block
brings disability awareness alive and to the forefront in schools and in community groups through puppet shows
(800) 368-KIDS www.kotb.comL.A. County Office of Education, Special Education
coordinates county division of special schools, classes & programs
(562) 803-8306 www.lacoe.eduLupus Foundation of America, Arizona Chapter
telephone hotline, education seminars, health fairs and community gatherings, and support group
(602) 870-7622 www.lupus.orgOffice of Special Education & Rehabilitative Services, U.S. Department of Education
(800) 872-5327 www2.ed.gov
Rick Hansen Man in Motion Foundation
lesson plans for disability awareness in grades 4-8
www.rickhansen.comThe Special Education Muckraker
www.specialeducationmuckraker.com
Villa Esperanza Services
day school for children with disabilities, 3 months to 15 years
(626) 449-2919 www.villaesperanzaservices.org
EMPLOYMENT
AbilityFirst/Adult Vocational Services
sheltered workshops
(213) 748-7309 www.abilityfirst.orgArizona Department of Economic Security, Division of Employment & Rehabilitation Services
job program for eligible recipients of Temporary Assistance for Needy Families (TANF), as well as other qualified applicants
(602) 542-5954 www.azui.comArizona Department of Economic Security, Employment Administration/WIA
provide single access points to employment, work opportunity and welfare to work tax credit program, vocational rehabilitation
(602) 542-3957 www.azdes.govAsian Pacific Community Services
(818) 997-0819 1702.yippie.biz
Best Buddies/L.A.
(310) 253-5470 www.bestbuddies.org
Department of Rehabilitation
(213) 736-3904 www.dor.ca.gov
Disabled Businesspersons Association
(619) 594-8805 www.disabledbusiness.com
Diversity World
links to career development information, scholarships and internships
www.diversityworld.comJob Accommodation Network
(800) 526-7234 askjan.org
Marc Center of Mesa
home-based early intervention services, work adjustment, job placement, community living services for adults with disabilities
(480) 969-3800 www.marccenter.comPlan for Achieving Self-Support
work incentive program for people on SSI and/or SSDI
(800) 772-1213 www.ssa.govRegional Disability & Business Technical Assistance Centers
(800) 949-4232 www.adapacific.org
SEED Business Network
provides resources & consulting services for people with disabilities who are starting or running a small business
(949) 499-4223 www.biznet.orgWestview Services, Inc.
helps people with disabilities realize their potential; offices throughout Southern California
(714) 517-6606 www.westviewservices.orgWork World
software for personal computers for people with disabilities and others to find employment through federal and state work incentives and benefits (publication - free)
www.workworld.orgWorkforce Recruitment Program for College Students with Disabilities
provides summer work experience and full-time employment
(866) 633-7365 www.wrp.gov
EXERCISE EQUIPMENT
Flexiciser International
fitness for the mobility-challenged
(888) FLEX INC www.flexiciser.com
FAMILY RESOURCES
Achievable Foundation
bridges the gap between the resources needed and the financial challenges of the disability community
(310) 258-4156 www.achievable.orgArizona Department of Economic Security, Child Care Administration
(602) 244-2678 www.azdes.gov
Arizona Department of Economic Security, Child Protective Services
child abuse hotline, accept and investigate reports of abuse, neglect, dependency, and abandonment of children
(888) SOS-CHILD www.azdes.govArizona Department of Economic Security, Division of Benefits and Medical Eligibility
temporary cash assistance to needy dependent children, food stamps, general assistance, medican assistance, temporary assistance for needy families, two parent emplolyment program
(602) 542-9935 www.azdes.govArizona Department of Economic Security, Division of Child Support Enforcement
locate absent parents, establish paternity, establish and enforce orders, and collect child support payments
(602) 252-4045 www.azdes.govDisability Resources Monthly Guide to Disability Resources on the Internet
comprehensive listing and reviews of thousands of resources on the Web for every sort of disability
www.disabilityresources.orgFamily Care Agency
respite care provided to families who have a family member with a disability at home
(818) 345-2950 www.homehealthcareagencies.comFamily Fun
family fun and health information to improve family living
www.specialneedsfamilyfun.comFamily Resource Centers of Los Angeles
(213) 763-7800 www.csun.edu
Fiesta Educativa
information, education, training & referral services
(323) 221-6696 www.fiestaeducativa.orgIdeal Lives
a web site for parents and professionals supporting people with special needs with free resources, practical ideas, and answers to questions. Also publishes a downloadable e-book, "The Internet Resource Guide for Parents & Professionals"
www.ideallives.comLife Choices Women's Clinic
free pregnancy testing, natural family planning, GYN exams, STD tests, PAP tests, free pregnancy, abortion and adoption counseling
(602) 305-5100 www.lcwcaz.orgLoving Your Disabled Child
support for families of children with disabilities
(323) 299-2925 www.lydc.orgMUMS: National Parent to Parent Network
matches parents by children's diagnosis or by symptoms for undiagnosed disorders to expand parents' choices by connecting them to other parents
(877) 336-5333 www.netnet.netParents on Wheels
Ronald McDonald Houses
search for Ronald McDonald Houses
rmhc.orgShane's Inspiration
for a list of play dates and parks accessible to children of all abilities
(818) 752-5676 www.shanesinspiration.orgThe Fathers Network
The Jeffrey Foundation
family counseling & childcare
(323) 965-7536 www.thejeffreyfoundation.comThrough the Looking Glass
for parents who also have disabilities
(800) 644-2666 www.lookingglass.orgVolunteers of America/L.A.
respite services for families & guardians who care for a child, youth or adult with developmental disabilities who are clients of a regional center
(213) 385-9688 www.voala.orgWardrobe Wagon
national distributor of special needs clothing and footwear
(800) 992-2737 www.wardrobewagon.com
HEALTH & INSURANCE SERVICES
Aiding the Medically Compromised
coordinates dental & medical services
(818) 385-3500 www.wellness.comArizona Association of Community Health Centers, Inc.
(602) 253-0090 www.aachc.org
Arizona Dental Association
free referrals to reduce fee dental services for individuals with limited resources or those in public assistance
(480) 344-5777 www.azda.orgCalifornia Major Risk Medical Insurance Program
alternative insurance program for those who are uninsurable, have pre-existing conditions that companies refuse to insure, or whose insurance options come only with excessively high premiums
(800) 289-6574 www.mrmib.ca.govCenters for Medicare & Medicaid Services
(877) 267-2323 www.cms.gov
Department of Insurance
(800) 927-4357 www.insurance.ca.gov
Department of Managed Care
(888) HMO-2219 www.hmohelp.ca.gov
Families USA
has a nationwide network of member groups to help locate up-to-date loal health care issues and options
(202) 628-3030 www.familiesusa.orgFamily Voices
health care advocacy for children with disabilities
(888) 835-5669 www.familyvoices.orgHealth Care Options
joining or leaving a Medi-Cal HMO
(800) 430-4263 www.coverageforall.orgHealth Insurance Resource Center
provides information on about 30 different state-specific high-risk insurance programs
www.healthinsurance.orgHealthScope
information on health plans, medical groups, hospitals
(800) 880-5305 www.healthyfamilies.ca.govHICAP
information, counseling, and advocacy for Medicare members
(800) 434-0222 www.cahealthadvocates.orgHMO Help Center
information and help for California HMO members
(888) HMO-2219 www.hmohelp.ca.govLifeBridge Free Life Insurance Program
through MassMutual for eligible parents of child with disabilities
(800) 272-2216 www.massmutual.comMaricopa County Department of Public Health
testing and treatments STDs, HIV, TB/X-Ray services, immigration immunization walk-in clinic
(602) 506-1678 www.maricopa.govMedi-Cal Managed Care Ombudsman
help with a problem you can't solve
(888) 452-8609 familiesusa.orgMedicare
information and help with Medicare and nursing home care
(800) 633-4227 www.medicare.govNational Academy for State Health Policy
(207) 874-6524 www.nashp.org
Office of the Patient Advocate
report cards on California HMOs
(866) 466-8900 www.opa.ca.govQuotesmith Corp.
high-risk pools, small-group plans, specific quotes for private insurance policies, and full marketplace for spectrum of insurance products
(800) 556-9393 www.insure.comState Children's Health Insurance Program
offers health insurance to uninsured low-income children (up to age 19) - even those who can't qualify for Medicaid
(877) KIDS-NOW www.insurekidsnow.govState Health Insurance Counseling & Assistance Programs
The California Patient's Guide: Your Health Care Rights & Remedies
(publication - free)
(800) 952-5210 www.calpatientguide.orgThe Discharge Planner
for those needing care but discharged (publication - free)
(909) 656-2943 www.dischargeplanner.netThe National Association of State Comprehensive Health Insurance Plans
gathers information about state-sponsored health insurance for children and others with disabilities and/or considered "high risks"
naschip.orgThe Partnership for Prescription Assistance
assistance with applying for public and private prescription assistance
(800) 4PPA-NOW www.pparx.org
HOUSING, INDEPENDENT LIVING & OTHER SITUATIONS
About Care, Inc.
support services for the homebound, such as transportation, shopping and errands, minor repairs, and more
(480) 802-2331 www.aboutcare.orgAlcholoism, Addiction Assistance Association
a non-profit organization that provides residential services for alcoholics and drug addicts
www.5a.orgARISE, Inc.
habilitation, family services, early intervention, group homes, day programs for disabled individuals
(480) 497-1889 www.riseinc.netArizona Association of Homes and Housing for the Aging
a nonprofit organization that provides referrals to member nursing facilities, assisted living facilities, independent living facilities
(602) 230-0026 www.azaha.orgArizona Center for the Blind and Visually Impaired
transportation coordinated with community resources, assistive technology training, community education, and more
(602) 273-7411 www.acbvi.orgCalifornia Foundation for Independent Living Centers
(916) 325-1690 www.cfilc.org
California Registry
information on hospice and long-term care
(800) 777-7575 www.calregistry.comCalifornia State Independent Living Council
(916) 445-0142 www.calsilc.org
Children's Hospice International
(800) 2-4-CHILD www.chionline.org
CHOICESS
dedicated to improving and increasing the ability of persons with developmental disabilities to choose and live in their own homes or apartments, have profitable jobs, develop friendships and participate in the community.
(626) 447-5477 www.choicess.comFannie Mae, Western Regional Office
housing loans for people with disabilities
(626) 396-5100 www.fanniemae.comGrants for Ramps
grants for exterior accessibility for renters with disabilities
(916) 327-3646 www.hcd.ca.govIndependent Living Center of Southern California
(818) 785-6934 www.ilcsc.org
Independent Living Research & Utilization Program
provides research, education, consultation in ADA, independent living, home-based services, and health issues affecting people with disabilities
(713) 520-0232 www.ilru.orgLanterman Developmental Center
900-bed state residential facility
(909) 595-1221 www.dds.ca.govLiving Independently in Los Angeles
online database of resources
(310) 267-4944 www.icdri.orgLos Angeles Accessible Apartments
(818) 782-2211 www.lowincomehousing.us
Lura Turner Homes
residential care, adult learning center and residential training for community living for developmentally disabled adults
(602) 943-4789 luraturnerhomes.orgNational Accessible Apartment Clearinghouse
(800) 421-1221 www.socialserve.com
National Resource Center on Supportive Housing & Home Modification
includes nationwide directory of funding agencies
(213) 740-1364 www.homemods.orgU.S. Dept. of Housing/Urban Development
list of subsidized rental housing
(202) 708-1112 www.hud.govVilla Esperanza Services
(626) 449-2919 www.villaesperanzaservices.org
LEGAL - PUBLIC & PRIVATE
AdvocateWeb
for those exploited by trusted helping professionals
www.advocateweb.orgAmerican Arbitration Association
dispute settlement
(602) 734-9333 www.adr.orgAmerican Civil Liberties Union of Arizona
civil liberties promotion, primarily litigation
(602) 650-1967 www.acluaz.orgArizona Center for Law in the Public Interest
class action litigation on issues affecting a whole community such as consumer issues and environmental pollution
(602) 258-8850 www.aclpi.orgBet Tzedek Legal Services
(323) 939-0506 www.bettzedek.org
Cancer Legal Resource Center - LLS
(866) 843-2572 www.lls.edu
Disability Mediation Center - LLS
(213) 736-1000 www.lls.edu
Disability Rights Advocates
health care rights for people with disabilities
(888) 926-0274 www.dralegal.orgDisability Rights Education & Defense Fund
parent advocacy training, litigation, public policy reform, and more
(510) 644-2555 www.dredf.orgHeimberg Law Group, LLP
The Heimberg Law Group "Protects Your Rights from Their Wrongs" by championing the cause of victims of medical malpractice, life-altering injuries, elder abuse and health fraud, and those injured by medical products and pharmaceuticals
(800) 425-5557 www.heimberglaw.comNational Disability Rights Network
protection and advocacy
(202) 408-9514 www.napas.orgProtection & Advocacy
legal advocacy for people with disabilities
(800) 776-5746 www.disabilityrightsca.orgPublic Counsel
(213) 385-2977 www.publiccounsel.org
LISTSERVS, BULLETIN BOARDS, ONLINE COMMUNITIES, BLOGS
Arc of the United States Discussion Boards
many topics around the theme of developmental disability
www.thearc.orgBirth to Three Support
supporting parents and professionals in their handling of early intervention programs for children of any diagnosis or "at-risk" situation
groups.yahoo.comCareCure Community
information on health, care, travel, relationships for those who have spinal cord injuries
sci.rutgers.eduChilddevdelays
for parents of children with developmental delays: speech and language, motor, cognitive, sensory, social and physical
groups.yahoo.comCIHear
for those with or considering cochlear implants
health.groups.yahoo.comClosing the Gap Forums
click on "Featured Discussions"
www.closingthegap.comCoalition of Special Education Parents
for parents of children receiving special education services under IDEA in preschool through high school
groups.yahoo.comConductDisorder.com
for the battle-weary parent with a challenging child with special needs who needs a soft place to land
www.conductdisorders.comCripworld
Dr. Mac's Behavior Management Advice Site
advice offered on a bulletin board
www.BehaviorAdvisor.comHealingWell.com
offers a variety of groups on a variety of special needs, such as asthma and allergies, multiple sclerosis, ostomies, diabetes and more
www.healingwell.comMamasource: Connecting Moms in Your Community
an online community that connects you with "moms" (parents) in your community, where you can ask questions, get referrals, and research topics of interest to you
www.mamapedia.comMommy Tips
SID-DSI_AllAboutKids
group for parents of children with Sensory Processing Disorder
groups.yahoo.comThe Transverse Myelitis Internet Club
WheelchairJunkie.com
Yahoo
a variety of discussion groups for various disabilities and issues
dir.yahoo.com
MEDICAL RESOURCES
Advocates for the Disabled, Inc.
provide advocacy assistance for disabled individuals with low income
(602) 212-2600 www.advocatesforthedisabled.orgAmerican College of Surgeons
information about common operations
www.facs.orgLab Tests Online
information about lab tests
www.labtestsonline.orgMedical Board of California
(916) 263-2382 www.medbd.ca.gov
National Institute of Health
health information
www.health.nih.govPhoenix State Health Insurance Assistance Program
provide education, outreach, counseling, and information to Medicare beneficiaries, their families and caregivers
(800) 432-4040 www.azdes.govPubMed
National Library of Medicine
www.ncbi.nlm.nih.govSexual Health Network
The Childbirth Connection Inc.
training & support to pregnant women who are physically and/or developmentally disabled
(818) 734-0723 www.wfrec.orgWomen with Disabilities Resource Center
information on health issues
(800) 994-WOMAN www.womenshealth.gov
MOBILITY RESOURCES
1-800-Wheelchair
a one stop, full service medical service company for people with both a short term or a long term disability
(800) 320 - 714 www.1800wheelchair.comAllegro Medical
medical supplies, wheelchairs, scooters, personal care & more
www.allegromedical.comBruno Independent Living Aids
stair lifts
(800) 882-8183 www.bruno.comColumbia Medical Mfg.
bathing, mobility, exercise & specialty wheelchairs
(800) 454-6612 www.columbiamedical.comDiscountRamps.com
Freedom Concepts
customized three-wheeled bikes for children and adults with disabilities
(800) 661-9915 www.freedomconcepts.comFreedom Designs
seating/positioning products & wheelchairs
(800) 331-8551 www.freedomdesigns.comGrabBars.com
HealthCraft Products
standing & transfer support products
(888) 619-9992 www.healthcraftproducts.comInvacare
beds & bed-related products, lifts & slings, seating & positioning, respiratory, therapeutic support surfaces, patient care, wheelchairs & more
(800) 333-6900 www.invacare.comLife with Ease
online store
www.lifewithease.comMobile Help
assists those who need wheelchairs, van conversions, electric scooters, mini vans, lift chairs and other driving aids
(800) 454-3862 www.mobilehelpinc.comMobility Management
(publication - free)
(972) 687-6700 www.mobilitymgmt.comMobility Unlimited
assists adults with physical disabilities who have exhausted all other financial sources for mobility needs
(877) 516-0605 www.mobilityunlimited.orgNational Mobility Equipment Dealers Association
(800) 833-0427 www.nmeda.com
New Mobility Magazine
online and print magazine (publication - fee)
www.newmobility.comPermobil USA
powered wheelchairs
(800) 736-0925 www.permobilusa.comPride Mobility Products
powered wheelchairs, scooters & lift chairs
(800) 800-8586 www.pridemobility.comRedman Power Chair
including lateral supports and positioning devices
(800) 727-6684 www.redmanpowerchair.comSmart Home
Snug Seat
standers, pediatric wheelchairs, gait training & hygiene products
(800) 336-7684 www.snugseat.comSpinLife
products in motion
www.spinlife.comSunrise Medical
wheelchairs, scooters, walking aids, oxygen therapy, lifts, daily living products, beds, mattresses & positioners & more
(800) 333-4000 www.sunrisemedical.comSure-lok Inc.
wheelchair restraint systems
(800) 866-0004 www.sure-lok.comThe Landeez All-Terrain Wheelchair
for children and adults
(800) 411-7789 www.landeez.comTiLite
titanium wheelchairs that are light and hand-crafted
(800) 545-2266 www.tilite.comUniversal Medical
bath products, wheelchairs, scooters, walkers, canes, pressure cushions, hygiene products
(888) 864.6331 www.uni-medical.comX10.com
safety and lighting products for the home
www.x10.comXtreme Medical Inc.
wheelchairs, rehabilitation equipment, urological supplies, and disability-related equipment
(562) 803-9444 www.xtrememedical.com
PARKS & RECREATION
Access to Sailing
(562) 433-0561 www.accesstosailing.org
Adaptive Adventures
listings by state and sports
(877) 679-2770 adaptiveadventures.orgAlisa Ann Ruch Burn Foundation
resident co-ed camp for children with burn injuries, ages 5 to 18
(818) 249-2230 www.aarbf.orgAthletes Helping Athletes
provides adaptive athletic equipment and hand-cycles
(888) 566-5221 www.roadrunnersports.comBear Mountain Ski Resort, California Handicapped Skiers
(909) 585-2519, www.bearmountain.com
Cali-Camp - summer camp for children with disabilities
(310) 455-0404 www.calicamp.com
Camp Bloomfield
for infants, children & teens who are blind or visual impairments, up to age 21, and their families
(323) 295-4555 www.chooseacamp.comCarousel Horse Therapy
(661) 252-7333 www.carouselranch.org
Don Krebs' Access to Recreation
adaptive recreation equipment for those who have physical disabilities (catalogue - free)
(800) 634-4351 www.accesstr.comEaster Seals Camping & Recreation Program
(800) 221-6827 www.easterseals.com
Fishing Has No Boundaries
(800) 243-3462 www.fhnbinc.org
Handicapped Scuba Association International
(800) 673-4540 www.hsascuba.com
Kids' Camp
national directory of camps for children with disabilities
www.kidscamps.comL.A. City Recreation & Parks
programs for people, ages 2fi to adult, of all abilities
(323) 226-1402 www.laparks.orgMammoth Mountain Ski Area & Resort
(888) 462-6668 www.mammothmountain.com
National Center on Physical Activity & Disability
(800) 900-8086 www.ncpad.org
National Disability Sports Alliance
(401) 792-7130 www.ndsaequestrian.org
P.E. Central
for good adaptive P.E. resources
www.pecentral.orgPower Soccer USA
soccer for those in power wheelchairs
www.powersoccerusa.netPrairie Creek Redwoods State Park
11-mile barrier free trail, accessible campsites
(707) 464-6101 www.parks.ca.govRide On Therapeutic Horsemanship
Shane's Inspiration
for a list of parks accessible to children of all abilities
(818) 752-5676 www.shanesinspiration.orgSpecial Equestrian Riding Therapy
(818) 776-6476 www.sert.org
Special Olympics California (South)
(310) 215-8380 www.specialolympics.org
Sports 'N Spokes
magazine for wheelchair sports and recreation (publication - fee)
(602) 224-0500, www.pvamagazines.comSquaw Valley USA
(888) 766-0321 www.squaw.com
Tahoe Adaptive Ski School at Alpine Meadows
(530) 581-4161 www.dsusafw.org
The National Handicap Motorcyclist Association
(212) 242-3376 physical-therapy.advanceweb.com
Tools & Resources for People of All Ages, Rev. 4th ed.
(publication - fee)
(800) 266-5592 www.hunterhouse.comU.S. Adaptive Recreation Center
(909) 584-0269 www.usarc.org
USTA Wheelchair Tennis
(714) 361-3663 www.usta.com
Yogability Institute
private & group yoga classes for people with disabilities
(310) 358-3338 www.yogability.org
PUBLICATIONS, RESOURCES & EVENTS
360 Magazine
ezine that challenges the traditional view of those in wheelchairs
www.360mag.comA Consumer Guide to Handling Disputes with Your Employer or Private Health Plan, 2005 Update
(publication - free)
www.kff.orgA Wheelchair Rider's Guide to the Los Angeles & Orange County Coast
(publication - free)
(510) 286-0933 www.wheelingcalscoast.orgAbilities Expo
annual tradeshow and conference
(877) 923-3976 www.abilitiesexpo.comAccess Amtrak
(publication - free)
(877) 268-7252 www.thetraintraveler.comAccessible Air Travel
(publication - free)
(800) 444-0120 www.unitedspinal.orgAudacity Magazine
the disabled magazine for the abled mind
www.audacitymagazine.comCalifornia Department of Developmental Services, Regional Centers
Caution: Do Not Open Until Puberty!
a book by Rick Enright designed to act as an ice-breaker regarding sexuality discussions with teens who have disabilities
(519) 685-8703. www.tvcc.on.caChildren with Cerebral Palsy: A Parents' Guide
covers practicalities of living day-to-day with CP (publication - fee)
(800) 843-7323 www.woodbinehouse.comChristopher & Dana Reeve Paralysis Resource Center
(800) 539-7309 www.christopherreeve.org
Clearinghouse on Aging and Developmental Disabilities
Computer Resources for People with Disabilities: A Guide to Assistive Technologies, Disability Resou
information for, by, and about people with disabilities
(800) 272-771 www.healthcare.uiowa.eduDisabilities, Dragons and Other Magical Discoveries: A Kid's Guide to Understanding and Living with
a book by Rick Enright that will make kids laugh while they learn
www.tvcc.on.caDisability Etiquette
downloadable guide published by the United Spinal Association (publication - free)
(800) 807-0192 www.unitedspinal.orgDisability World
bimonthly web-zine
www.disabilityworld.orgDisabled Dealer
monthly magazine of services and products (publication - fee)
(800) 588-5099 www.disableddealer.comDiscovering People on Wheels
Teacher's Package, comes with 35 coloring books & a resource guide (publication - fee)
(215) 581-0709 www.inglis.orgEnabling Romance: A Guide to Love, Sex & Relationships for People with Disabilities
(publication - fee)
(888) 850-0344, www.newmobility.comExceptional Parent
monthly magazine (publication - fee)
(877) 372-7368 www.eparent.comExceptional Parent Annual Resource Guide
organizations, associations, products and services (publication - fee)
(800) 535-1910 www.eparent.comExceptional Parent Library
books in all categories and for all age groups
(800) 535-1910 www.eparent.comHealth, Wellness & Aging with Disability
96-page book by former executive director of the Westside Center for
(310) 827-0269 www.jik.comHome Education Magazine
(800) 236-3278 www.home-ed-magazine.com
Independent Living
(publication - fee)
(310) 827-0269 www.jik.comKids on Wheels: A Young Person's Guide to Wheelchair Lifestyle
two volume resource guide: one for young people and one for parents, teachers and professionals (publication - fee)
(888) 850-0344, www.wheelchairfunstore.comLiving Independently in Los Angeles
online database of resources
(310) 267-4944 www.icdri.orgMeals for Easy Swallowing
125-page recipe book (online only)
www.als-mda.orgMed-Sell
buy and sell used medical equipment and find accessible housing
www.disabilityonline.comMobility Management
(publication - free)
(972) 687-6700 www.mobilitymgmt.comMother to Be
(publication - fee)
(800) 333-6867 specialneeds.comNational Information Center for Children & Youth with Disabilities
(800) 695-0285 nichcy.org
New Horizons: Information for the Air Traveler with a Disability
(publication - free)
(888) 860-7244 airconsumer.dot.govNew Mobility Magazine
online and print magazine (publication - fee)
www.newmobility.comOrchid Magazine
for women with disabilities
www.fpg.unc.eduParalinks Electronic Magazine
online for people with spinal cord injuries
www.paralinks.netParalysis Resource Guide
(publication - free)
(800) 539-7309 www.christopherreeve.orgPlanning for Your Special Needs Child
(publication - free)
(888) 878-3256 www.metlife.comRagged Edge Online
online magazine
www.ragged-edge-mag.comRainbow Resource Guide
comprehensive guides to all social services; available by county (publication - fee)
(310) 834-4000 www.resourcedirectory.comResources for People with Disabilities: A National Directory
(publication - fee)
(800) 306-9941 www.infobasepublishing.comSCI Info-Pages
SCI Video Access
a lending program of informational videos
(800) 548-2673 www.spinalcordinjury.orgSpecial Education Mediation: A Guide for Parents
downloadable brochure by the National Center on Dispute Resolution and the Technical Assistance Alliance for Parent Centers
www.directionservice.orgThe California Patient's Guide: Your Health Care Rights & Remedies
(publication - free)
(800) 952-5210 www.calpatientguide.orgThe Disability Resources Monthly
guide to resources on the net
www.disabilityresources.orgThe Discharge Planner
for those needing care but discharged (publication - free)
(909) 656-2943 www.dischargeplanner.netThe Sex Information & Education Council of the United States
bibliography of every type of printed or online material in every category regarding sex and those who are disabled
(212) 819-9776 www.siecus.orgTools & Resources for People of All Ages, Rev. 4th ed.
(publication - fee)
(800) 266-5592 www.hunterhouse.comTraumatic Brain Injury National Data Center
Woodbine House
books on disabilities for parents, children, teachers, and professionals
(800) 843-7323 www.woodbinehouse.comWorld Congress & Exposition on Disabilities
conference and tradeshow
thewcd.org
REGIONAL CENTERS
Eastern Los Angeles Regional Center
eastern L.A. County, including Alhambra & Whittier
(562) 299-4700 www.elarc.orgFrank D. Lanterman Regional Center
central L.A. County, including Pasadena, Glendale & Burbank
(213) 383-1300 www.lanterman.orgHarbor Regional Center
southern L.A. County, including Bellflower, Harbor, Long Beach & Torrance
(310) 540-1711 www.harborrc.orgInland Regional Center
Riverside & San Bernardino counties
(909) 890-3001 inlandrc.orgNorth Los Angeles County Regional Center
northern L.A. County, including San Fernando & Antelope valleys
(818) 788-1900 www.nlacrc.orgRegional Center of Orange County
Orange County
(714) 796-5100 www.rcocdd.comSan Gabriel/Pomona Regional Center
eastern L.A. County, including El Monte, Monrovia, Pomona & Glendora
(909) 620-7722 www.sgprc.orgSouth Central Los Angeles Regional Center
southern L.A. County, including Gardena & Compton
(213) 763-7800 www.sclarc.orgTri-Counties Regional Center
Ventura, Santa Barbara & San Luis Obispo counties
(805) 962-7881 www.tri-counties.orgWestside Regional Center
western L.A. County, including Culver City, Inglewood & Santa Monica
(310) 258-4000 www.westsiderc.org
REHABILITATION
Alcholoism, Addiction Assistance Association
a non-profit organization that provides residential services for alcoholics and drug addicts
www.5a.orgARISE, Inc.
habilitation, family services, early intervention, group homes, day programs for disabled individuals
(480) 497-1889 www.riseinc.netArizona Department of Economc Security, Rehabilitation Services Administration
independent living for individuals with physical, mental or psychological disabilities who require services to achieve economic self-sufficiency through work
(602) 542-3332 www.azdes.govAsian Rehabilitation Services, Inc.
(213) 743-9242 www.asianrehab.org
Casa Colina Centers for Rehabilitation
(909) 596-7733 www.casacolina.org
Center for Cerebral Palsy at UCLA
interdisciplinary clinic for the medical management of movement disorders in children and adults with CP
(310) 825-5858 www.uclaccp.orgCenter for Diagnostic & Rehabilitation Medicine, Daniel Freeman Memorial Hospital
(310) 673-4660 www.centinelamed.com
Childrens Hospital Los Angeles
(323) 660-2450 www.chla.org
Head Injury Rehabilitation Services
Lions Foundation of Arizona
Oasis Rehabilitation Center-- physical, occupational, speech, aquatic therapy for any person with hearing or visual impairment
(602) 914-1332 www.lionsfoundationarizona.orgMemorial Rehabilitation Hospital
(562) 933-9000 www.memorialcare.org
National Rehabilitation Information Center
(800) 346-2742 www.naric.com
Northridge Hospital Medical Center
(818) 885-8500 www.northridgehospital.org
Orthopaedic Hospital L.A.
provides orthopedic care for children under 18 years regardless of ability to pay
(213) 742-1300 www.orthohospital.orgRancho Los Amigos Medical Center
(800) 426-4467 www.rancho.org
Rehab Institute of Southern California
for all ages who are physically disabled
(714) 633-7400 www.rio-rehab.comRehabilitation Engineering & Assistive Technology Society of North America
(703) 524-6686 www.resna.org
Rehabilitation International
(212) 420-1500 rehab-international.org
Shriner's Hospitals for Children - Los Angeles
a network of pediatric specialty hospitals that do not accept payment for excellent services
(213) 388-3151 www.shrinershq.orgSt. Jude Medical Center - Fullerton
(714) 871-3280 www.stjudemedicalcenter.org
The Petrofsky Center for Rehabilitation & Research
functional electrical stimulation for spinal cord injuries
(714) 508-3960 www.la.bbb.orgThe Rehabilitation Institute at Santa Barbara
(800) 350-3788 www.hospitalsoup.com
VA Medical Center, Long Beach
(562) 494-2611 www.longbeach.va.gov
SUPPORT GROUPS
Most national associations have local chapters that can provide you access to local support and resources.
Sometimes local chapters are listed on the national web site. If you can't find a local chapter, e-mail or call the national chapter and ask if there is a local chapter near you.
If there is not a local chapter near you, consider starting one. The national organization is usually willing to help you with advice and information on how to start a local chapter.Alzheimers
Alzheimer's Association- Desert Southwest Chapter
home assessment and case management for families, Alzheimer's support helpline and support groups, respite care programs
(602) 528-0545 www.alzdsw.orgAmputee
Functional Amputee Support Team
Mutual Amputee Aid Foundation
provides peer-support and educational and networking support
(877) 999-6223 mutualamputeeaidfoundation.orgThe Amputee Coalition of America
The Barr/United Amputee Assistance Fund
Auditory Disorders
American Speech - Language - Hearing Association
Arizona Commission for the Deaf and the Hard of Hearing
provide information and referral to the deaf, hard of hearing and their familities
(602) 542-3323 www.acdhh.orgCalifornia Deaf - Blind Services
CI Hear
web site for those considering or who have had a cochlear implant
www.cihear.comDial-A-Hearing Screening Test
Greater L.A. Agency on Deafness (GLAD)
Hear Now
hearing aids for people with hearing impairments who do not have the financial resources to purchase these devices
(800) 648-4327 www.starkeyhearingfoundation.orgHearing Aid Helpline
Hope for Hearing Foundation
International Hearing Aid Services
information, referrals& a hearing aid assistance program through the Starkey Foundation
(323) 588-0742 www.b2byellowpages.comJohn Tracy Clinic
serving children ages birth to 5 years old
(800) 522-4582 www.jtc.orgL.A. County Deaf Information
Teletypewriter (TDD) Services - Information and Referral Services
(800) 660-4026 www.laalmanac.comLions Foundation of Arizona
Oasis Rehabilitation Center-- physical, occupational, speech, aquatic therapy for any person with hearing or visual impairment
(602) 914-1332 www.lionsfoundationarizona.orgS.E.E. Center
promotes early identification of hearing problems
(562) 430-1467 www.seecenter.orgSelf-Help for Hard of Hearing People
Birth Defects
Birth Defect Research for Children
March of Dimes
nonprofit organization for pregnancy and baby health
(602) 266-9933 www.marchofdimes.comBrain Injury
Betty Clooney Foundation for Persons with Brain Injury
Brain Injury Association
Brain Injury Association, Inc.
information on treatment, rehabilitation, research and prevention
(800) 444-6443 www.biausa.orgBrain Injury Resource Center/Head Injury Hotline
information about rehabilitation
(206) 621-8558 www.headinjury.comTraumatic Brain Injury Model Systems of Care
specialty head injury clinics funded with federal grants for developing and demonstrating state-of-the-art care for people with TBI
www.tbims.orgBrain Tumor
Children's Brain Tumor Foundation
Cancer
American Cancer Society
patient service, information and guideline, support groups, patient navigation acceptance
(602) 224-0524 www.cancer.orgLeukemia & Lymphoma Society, Desert Mountain States Chapter
family support groups, health education, supplementary financial assistance to patients with leukemia, lymphomas, multiple myeloma and Hodgkins disease
(602) 788-8622 www.lls.orgLeukemia Foundation of Arizona
financial aid and counseling to keep families of leukemia patients together
(602) 495-1472 www.leukemiafoundationofaz.orgCardio-Respiratory Disorders
American Heart Association
American Lung Association
Arizona Children's Heart Foundation
provide financial support to families of children with congenital heart conditions
(602) 841-4451 www.childrensheartfoundation.orgStroke Association of Southern California
Circulatory & Metabolic Disorders
Aplastic Anemia & MDS International Foundation, Inc.
Provide public education and information concerning aplastic anemia and Myelodysplastic Syndromes and Paroxysmal Nocturnal Hemoglobinuria
(800) 747-2820 www.aamds.orgChildren's PKU Network
Cleft Palate
FACES - The National Craniofacial Association
The Cleft Palate Association
Craniofacial
Children's Craniofacial Association
information, support, resources, family networking, financial assistance
(800) 535.3643 CCAkids.orgCranio Kids
forums, blog, information, family support, buddies for craniosynostosis
www.craniokids.orgCraniosynostosis And Parent Support, Inc.
information, state contacts and doctor listings, care package, CranioFamily support program, forum
www.cappskids.orgCystic Fibrosis
Cystic Fibrosis Foundation
Developmental Disorders
AbilityFirst
Advisory Council on Developmental Disabilities, Maricopa County
provide information and referral to enhance the lives of people with developmental disabilities
(602) 246-0546 cpes.comArc of Arizona, Inc.
development of services for children and adults
(602) 334-2721 www.arcarizona.orgArizona Department of Economic Security, Division of Developmental Disabilities
has developmental disabilities programs and provides services for individuals with developmental disabilities based on assessed need, such as attendant care, day treatment and training, employment services, etc.
(602) 542-0419 www.azdes.govAutism Society of America
Council for Exceptional Children
Easter Seals
Genetic Alliance
Hydrocephalus Association
LIFE, Inc
early childhood special education, child development servies, and therapies
(480) 222-4100 www.lifeaz.orgLittle People of America- Valley of the Sun Chapter
support group, medical advisory board, social activities
(602) 720-7528 azlpa.orgLittle People's Research Fund, Inc.
clinical research into disabling conditions of skeletal dysplasia or dwarfism
(800) 232-5773 www.lprf.orgMAGIC Foundation
provides educational and supportive services to families of children with growth disorders and adult related disorders
(800) 362-4423 www.magicfoundation.orgMarch of Dimes Birth Defects Foundation
TASH (formerly the Association for the Severely Handicapped
The National Association for the Dually Diagnosed
Diabetes
American Diabetes Association
P.A.D.R.E. Foundation
support groups for kids & adolescents
(714) 532-8330 www.padrefoundation.orgHelp Lines
Advocates Against Adolescent Suicide
individual, family, marriage counseling
(480) 409-2376 therapists.psychologytoday.comInfo Line of Los Angeles
National Spinal Cord Injury Hotline - 9 a.m. - 5 p.m. EST
Suicide Prevention Center - open 24/7
Neuromuscular Disorders
American Parkinson Disease Association
Arizona Chapter of the National Parkinson Foundation
research, education, services for individuals with Parkinsons
www.parkinson.orgCenter for Cerebral Palsy at UCLA
interdisciplinary clinic for medical management
(310) 825-5858 www.uclaccp.orgFamilies of Spinal Muscular Atrophy
raises funds to promote reserach as to causes and treatments
(800) 886-1762 www.fsma.orgMultiple Sclerosis Complementary & Alternative Medicine
online community that reviews complementary and alternative medicine therapies
www.ms-cam.orgMuscular Dystrophy Association
offers resources, clinical referrals and information
(800) 572-1717 www.mdausa.orgMuscular Dystrophy Family Foundation
provides adaptive equipment and support to those affected by one of more than 40 neuromuscular diseases
(800) 544-1213 www.mdff.orgNational Multiple Sclerosis Society
information on living with MS, treatment, scientific progress, clinical research, MS specialty centers, and local chapters
(800) 344-4867 www.nationalmssociety.orgParent Project Muscular Dystrophy
particularly focused on Duchenne and Becker muscular dystrophy
(800) 714-5437 www.parentprojectmd.orgThe Cerebral Palsy Center
known for its spasticity management program using rhizotomy
(800) 678-KIDS www.stlouischildrens.orgThe National Pediatric MS Center
supports multi-disciplinary clinical care and scientific research of children and adolescents with MS
(631) 444-7802 www.pediatricmscenter.orgThe Undersea & Hyperbaric Medical Society
provides information to "improve the scientific basis for hyperbaric oxygen therapy"
(301) 942-2980 www.uhms.orgUnited Cerebral Palsy
national organization with a network of local affiliates
(800) 872-5827 www.ucp.orgOrgan Disorders
American Liver Foundation, Greater L.A. Chapter
American Liver Foundation- Arizona Chapter
Living Bank International, The
national centralized multi-organ and whole body donor registry
(800) 528-2971 www.livingbank.orgNational Kidney Foundation
Ostomy
United Ostomy Association
Pain
American Pain Foundation
National Foundation for the Treatment of Pain
Speech & Language
All-Star Kids Tutoring
one-on-one tutoring program that helps students who need additional assistance in reading skills
(602) 957-0000 www.cisarizona.orgAmerican Speech - Language - Hearing Association
Spinal Cord Injuries & Disorders
American Paraplegia Society
American Spinal Injury Association
Arizona Chapter Paralyzed Veterans of America
provide medical and social services to veterans and non-veterans with spinal cord injuries or other mobility challenges
(602) 244-9168 www.azpva.orgCareCure Community
information on health, care, travel, relationships for those who have spinal cord injuries
sci.rutgers.eduCraig Hospital's Research Department - mostly free
publications on staying healthy after SCI
(303) 789-8202 www.craighospital.orgCRPF Orange County Support Group
Disabled American Veterans
Free Wheelers Spinal Cord Injury Group
National Spinal Cord Injury Association
Paralyzed Veterans of America
Rehabilitation Research and Training Center on Secondary
Shriner's Hospitals for Children
three specialty sci clinics: Chicago, Philadelphia, Sacramento. Free hospital services
(800) 237-5055 www.shrinershq.orgSpinal Cord Injury Information Network
Spinal Cord Opportunities for Rehabilitation Endowment
grants to young athletes who have suffered a spinal cord injury
(213) 413-4130 www.scorefund.orgThe Transverse Myelitis Association
The Transverse Myelitis Internet Club
Internet club with message board, support with others, links and e-mail lists
www.myelitis.orgUnited Spinal Association
WYNGS
support groups for those with spinal cord injuries and their families
(818) 267-3031 www.wyngs.orgSpine & Joint Disorders
National Scoliosis Foundation
Scoliosis Research Society
association of physicians and health care workers; provides details on clinical practices and treatment
(414) 289-9107 www.srs.orgSpina Bifada Association of America
Spondylitis Association of America
The Scoliosis Association
publishes a newsletter and provides information about local chapters and support groups
(800) 800-0669 www.scoliosis-assoc.orgVision Disorders
American Council of the Blind
American Foundation for the Blind
Arizona Braille and Talking Book Library
provide library services to visually or physically disabled individuals
(602) 255-5578 www.lib.az.usArizona Council of the Blind, Inc.
Arizona Deafblind Project
committee advisory board that represents agencies that provide services from birth through older adults, acts as resource for information, speaker's forum and assistance/service provision for individuals, families, schools and other agencies
(520) 770-3680 www.scottsdaleaz.govAudio Vision Reading for the Blind
radio reading services 24/7
(909) 797-4336 www.audiovisionradio.orgBlindness Support Services
Braille Institute of America
California Council of the Blind
California Deaf - Blind Services
Center for the Partially Sighted
Institute for Families
Lighthouse International
Lions Foundation of Arizona
Oasis Rehabilitation Center-- physical, occupational, speech, aquatic therapy for any person with hearing or visual impairment
(602) 914-1332 www.lionsfoundationarizona.orgNational Association for Parents of Children with Vision Impairments
National Federation of the Blind of California
THEME PARKS
Disneyland Guide Book for Guests with Disabilities
available at City Hall and includes special assistance pass that provides access to auxilary entrances noted in the guide
(714) 781-7290 disneyland.disney.go.comLegoland
(877) 534-6526 www.lego.com
Sea World: San Diego
(800) 432-1176 www.seaworld.com
TOYS & VIDEO GAME RESOURCES
Access to Recreation
(800) 634-4351 www.accesstr.com
American Girl
(800) 845-0005 store.americangirl.com
Beyond Play
Bill Bam's Collectibles
Professor X action figures; often Barbie's friend Becky
(209) 551-4097 www.billbam.comBindependent
Creative Academics
Enabling Devices
(800) 832-8697 enablingdevices.com
Fisher Price
toy bus with wheelchair access
(800) 432-KIDS www.fisher-price.comGPK
makes QuadCommander
(800) 468-8679 www.quadriplegia.comIdeal Lives
creative writing for people with disabilities
www.ideallives.comKaplan Early Learning Co.
(800) 334-2014 www.kaplanco.com
KY Enterprises
adaptive joysticks & sipa-and-puff controllers for Play Station
(562) 433-5244 quadcontrol.comLakeshore Learning Material
(800) 243-5354 www.lakeshorelearning.com
Toy Helpline
the nonprofit National Lekotek Center provides a play specialist to make recommendations, based on abilities and interests, for appropriate toys for a child with special needs.
(800) 366-PLAY www.lekotek.org
TRANSPORTATION
AJ's Medical Transport Inc.
non-emergency medical transportation
(818) 781-5455 local.yahoo.comCall Oscar
assisted transportation for non-emergency medical visits, outpatient surgery, hospital checkout, airport & social events.
(877) 225-5672 www.calloscar.comThe Air Care Alliance
nationwide league of humanitarian flying organizations who provide free transportation to treatment and medical services throughout the United States
(888) 260-9707 www.aircareall.orgMANUFACTURERS & ADAPTERS
Adaptive Driving Systems, Inc.
vehicle modification
(818) 251-9876 www.adaptivedrivingsys.comBESI, Inc.
safety belts, seat covers, harnesses for vans and busses
(800) 543-8222 www.besi-inc.comBruno Independent Living Aids
vehicle lifts & auto turning seats
(800) 882-8183 www.bruno.comColumbia Medical Mfg.
E-Z-On Products
harnesses, vests & safety belts
(800) 323-6598 www.ezonpro.comFreedom Motors
Handi-ramp
mounts & ramps for autos, boats & homes
(800) 876-RAMP www.handiramp.comIndependent Mobility Systems
Rampvan brand of minivan conversions
(800) 622-0623 www.braunability.comLiberty Motor Company
Q'Straint
wheelchair & occupant restraint systems
(800) 987-9987 www.qstraint.comRicon Corporation
wheelchair lifts & ramps for autos
(800) 322-2884 www.riconcorp.comRoll-A-Ramp
Snug Seat
Sure-lok Inc.
wheelchair & occupant restraint systems
(800) 866-0004 www.sure-lok.comThe Braun Corporation
wheelchair lifts, companion seats & chair toppers
(800) THE-LIFT www.braunability.comVantage Mobility International
wheelchair accessible vans & scooter lifts
(800) 348-8267 www.vantagemobility.comViewpoint Mobility
wheelchair accessible minivans
(877) 368-6072 www.viewpointmobility.comREBATES
Chrysler Corp. Automobility Program
GM Mobility Program
Toyota Mobility Program
RENTALS
Avis World Headquarters
Budget World Headquarters
Hertz World Headquarters
Wheelchair Getaways
VENTILATOR & FEEDING TUBE RESOURCES
Advanced Repiratory Company
sells The Vest, a medical device to assist with stimulating coughing
(800) 426-4224 www.thevest.comAdvice for Caregivers: Tube Feeding
J.H. Emerson Co.
sells The CoughAssist, a medical device to increase cough function
(800) 252-1414 www.healthcare.philips.comNew Horizons Newsletter
by and for ventilator users and those who care for them
www.makoa.orgThe American Association of Respiratory Care
(972) 243-2272 www.aarc.org
The International Ventilator-Users Network
(314) 534-0475 www.post-polio.org
WILLS, TRUSTS & MONEY MANAGEMENT
A Guide to Living Wills & Health Care Proxies
a Special Health Report from Harvard Medical School, includes advice, a living will worksheet, a living will & health care proxy forms (publication - fee)
www.health.harvard.eduMetDESK
MetLife's Division of Estate Planning for Special Kids
(800) METLIFE www.metlife.comNational Center on Life Planning
assists families to develop a comprehensive life plan for one who is disabled, including special needs trusts, living trusts, conservatorships, and funding specialists
(818) 709-5558 www.nclponline.comNational Hospice & Palliative Care Organization
living will and health care proxy forms; click on "Hospice & Palliative Care Information" and then click "Advance Care Planning" from the list in the left column
(800) 658-8898 www.nhpco.orgNational Special Needs Network
(954) 345-6465 www.nsnn.com