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THE GUIDE: Resources for the Disabilities Community
The The Guide: Resources for the Disabilities Community is designed to assist people who are
disabled and their family and friends to find services and resources to improve their lives.
We hope you find it useful.
The Guide is a work-in-progress. If you know of a resource that would be of interest to the
disability community, please e-mail it to gwilson@heimberglaw.com.
Many national organizations have local chapters; you may find this information on the
web sites listed in The Guide; if not, ask for contact information when you call or e-mail
the national organization.
If someone you know would like a copy of The Guide, please refer them to our web site,
www.heimberglaw.com, to download a copy.
The Heimberg Law firm has long championed the most
vulnerable members of our society -- those who have been severely, permanently and wrongly injured. Steve
(who is a doctor as well as a lawyer), leads a legal team dedicated to battling wrongdoers, whether
HMOs, hospitals, nursing homes, medical personnel, insurance companies, pharmaceutical companies,
reckless drivers, manufacturers of defective or dangerous products, or others.
Steve's commitment to the disability community extends past the walls of the courtroom and into
their personal lives through their support of Shane's Inspiration, WYNGS and other charitable organizations.
In essence, Heimberg Law Group, LLP aggressively and ethically pursues the best possible lives for those who
come to them for help.
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ACCESSIBILITY
The Access Board
(800) 872-2253 www.access-board.gov
Americans With Disabilities Act Information Line
(800) 514 -0301 www.usdoj.gov/crt/ada/adahom1.htm
Home Modification Resource Center
(213) 740-1364 www.homemods.org
DO-IT
accessible web design, internetworking, distance learning and IT
www.washington.edu/doit/
Tetra Society of North America
volunteer engineers, designers, technicians, health care providers and people with disabilities come together to create customized assistive devices not found in the marketplace
(877) 688-8762 www.tetrasociety.org/
Workshop Solutions
volunteer engineers, technicians, inventors and workshop enthusiasts make assistive devices not found in the marketplace.
www.wheelchairsolutions.com
RehabEngineer
assistive technology resources; also a job and internship job board
www.rehabengineer.com
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ADOPTION
Children Awaiting Families
(716) 232-5110 www.adopt.org/adopt/cap/cap.html
How to Make Adoption an Affordable Option
published by the National Endowment for Financial Education (publication - free)
(888) 878-3256 www.pueblo.gsa.gov
National Adoption Assistance Training Resource & Information Network
information on adoption subsidies for those adopting children with special needs
(800) 470-6665 www.adopting.adoption.com/child/subsidies-for-adoption.html
National Adoption Center
provides adoption opportunities for children with special needs, as well as an online photolisting of children and a free booklet of employers providing adoption benefits
(800) TO-ADOPT www.adopt.org
National Adoption Foundation
provides loans for adoption expenses
(203) 791-3811 www.nafadopt.org
National Adoption Information Clearinghouse
information on adoptive parent support groups, adoption exchanges and photolisting services, state adoption specialists, public and private agencies, and bibliography of thousands of articles
(888) 251-0075 www.adoption.org/adopt/national-adoption-information-clearinghouse.php
National Resource Center for Special Needs Adoption
(248) 443-7080 www.spaulding.org
North American Council on Adoptable Children
(651) 644-9840 www.nacac.org
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AGING
Clearinghouse on Aging and Developmental Disabilites
www.uic.edu/orgs/rrtcamr/clearinghouse.htm
Health, Wellness & Aging with Disability
96-page book by former executive director of the Westside Center for Independent Living (publication- fee)
(310) 827-0269 www.jik.com/index.html
Rehabilitation Research & Training Center on Aging with a Disability
(562) 401-7402 www.agingwithdisability.org
Villa Esperanza Services
(626) 449-2919 www.villaesperanzaservices.org
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ANIMAL PROGRAMS
Canine Companions for Independence
(800) 572-BARK www.caninecompanions.org
Canine Support Teams, Inc.
(951) 301-3625 www.caninesupportteams.org
Delta Society
information about agencies that train and supply service dogs
(800) 869-6898 www.deltasociety.org
Dogs for the Deaf
(541) 826-9220 www.dogsforthedeaf.org
Eye Dog Foundation for the Blind
(661) 831-1333 www.eyedogfoundation.org
Guide Dog Users of California
www.gdu-cal.org
Helping Hands - service monkeys
(617) 787-4419 www.helpinghandsmonkeys.org
P.A.W.S/LA
assists people with a life-threatening illness to keep and to care for their companion animals
(323) 876-7297 www.pawsla.org
Top Dog
teaches people with physical disabilities how to train their own dogs
(888) 257-6790 www.topdogusa.org
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ARTS
Artists With Brain Injuries
www.tbihome.org/members/pearl/home_1.html
Arts & Services for Disabled
(562) 982-0251
The Association of Mouth & Foot Painting Artists
www.amfpa.com
Bethune Theatredanse
(323) 874-0481 www.bethunedance.org
Disability History Museum
www.disabilitymuseum.org
Exceptional Children's Foundation/Art Center
for ages 18 to 65
(323) 737-7230 www.ecf.net/programs/adult_services/art_center.html
Inside Out Productions
commercial and fine art, as well as sewing
(310) 838-0255 www.insideoutproductions.com
InSight Cinema
big screen movies made accessible to audiences who are deaf and hard-of-hearing at mainstream theatres
www.insightcinema.org
National Arts & Disability Center
(310) 794-1141 nadc.ucla.edu/
VSA Arts
(916) 277-6747 www.vsasacramento.org
Disabled Drummers Association
nonprofit serving amateurs and professional drummers with disabilities
(305) 621-9022 www.disableddrummers.org
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ASSISTIVE TECHNOLOGY
ABF Service - equipment for those who are disabled
(818) 846-1705
AbilityHub
(802) 875-1993 www.abilityhub.com
ABLEDATA
(800) 227-0216 www.abledata.com
Alliance for Technology Access
(707) 778-3011 www.ataccess.org
AssistiveTech.net
(800) 726-9119 www.assistivetech.net
Assistive Technology Information & Referral
(800) 390-2699 www.atnet.org
Assistive Technology Services
(714) 547-6308 www.ocgoodwill.org/atec
AT508
Internet TV for assistive technology
www.at508.com
California Deaf/Disabled/Tele Program
state-mandated program for those with medical certification of a hearing, vision, speech, mobility or cognitive impairment which limits the use of their standard phone equipment and are eligible for specialized equipment and/or services
(800) 806-1191
California Relay Service
allows those with TTY phones or computers to communicate with those who have voice phones and vice versa
(800) 735-2929
Center for Assistive Technology
(800) 628-2281 www.cat.buffalo.edu
Computer Access Center
(310) 338-1597 www.cac.org
Computer Resources for People with Disabilities: A Guide to Assistive Technologies, Disability Resou
information for, by, and about people with disabilities
(800) 272-7713 www.healthcare.uiowa.edu/cdd/multiple/drl/drl.asp
Family Center on Technology & Disability
(202) 884-8068 www.fctd.info/
NanoPac.Inc.
online store providing services & equipment
(800) 580.6086 www.nanopac.com
National Registry of Rehabilitation Suppliers
(512) 267-6832 www.nrrts.org
Rehabtool.com
(281) 531-6106 www.rehabtool.com
Task Tech Center
(866) 828-8275 www.taskca.org
Technology & Persons with Disabilities Conference
annual, in Los Angeles
(818) 677-2684 www.csun.edu/cod
WebABLE
www.webable.com
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BEREAVEMENT SUPPORT
Center for Grief & Loss for Children
(866) 744-7433
Center for Loss in Multiple Births
(907) 222-5321 www.climb-support.org
The Compassionate Friends
(877) 969-0010 www.compassionatefriends.org
Our House
grief support groups, counseling for individuals, schools and medical professionals
(818) 222-3344 www.ourhouse-grief.org
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CAREGIVERS
LivHome
in-home support services, including transportation, personal care assistance, medication reminders, care for wheelchair-dependent or bed-bound
(323) 933-5880 www.livhome.com
Los Angeles Caregiver Respite Center
assists the caregivers of adults who have a permanent brain impairment
(800) 540-4442
Disabled & Alone
life services for people with disabilities
(800) 995-0066 www.disabledandalone.org
Family Care Agency
respite care provided to people with mental and/or physical disabilities, ages kindergarten to 12 and an adult unit
(818) 345-2950
In-Home Supportive Services
(888) 344-4477 www.cdss.ca.gov/agedblinddisabled/PG1296.htm
National Association for Home Care
home care and hospice-related information
(202) 547-7424 www.nahc.org
Well Spouse Association
(800) 838-0879
www.wellspouse.
Empowering Caregivers
chats, forums, emotional and spiritual support, information
www.care-givers.com/community/chat/chat.htm
CaringRoad Support Network
online community of family caregivers
www.caringroad.org
National Family Caregivers Association
support and information on all topics of interest to family caregivers
(800) 896-3650 www.nfcacares.org
Partnership in Caring Helpline
crisis and information helpline for professionals and caregivers dealing with end-of-life issues
(800) 658-8898 www.partnershipforcaring.org
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CONSUMER ADVOCACY
A Consumer Guide to Handling Disputes with Your Employer or Private Health Plan, 2005 Update
(publication - free)
www.kff.org/consumerguide/7350.cfm
ADA Watch!
alert system for threats to the civil rights protections of those with disabilities
(202) 661-4722 www.adawatch.org/index.asp
Adult Protective Services
(888) 202-4248 www.dss.cahwnet.gov/pdf/apscolist.pdf
Advocacy Resources
www.jik.com/advlinks.html
American Association of People with Disabilities
(800) 840-8844 www.aapd.com
American Board of Medical Specialties
verifies board certification in the U.S. for 24 approved medical certification boards
(888) 327-4236 www.abms.org
California Advocates for Nursing Home Reform
(800) 474-1116 www.canhr.org
California Board of Guide Dogs for the Blind
(916) 324-9328 www.dca.ca.gov/guidedogboard
California Board of Pharmacy
(916) 445-5014 www.pharmacy.ca.gov
California Board of Physical Therapy
(916) 561-8200 www.ptb.ca.gov
California Board of Registered Nursing
(800) 838-6828 www.rn.ca.gov
California Board of Respiratory Care
(916) 323-9983 www.rcb.ca.gov
California Board of Speech & Audiology
(916) 263-2666 www.slpab.ca.gov
California Board of Vocational Nurses & Psychiatric Technicians
(916) 263-7800 www.bvnpt.ca.gov/
California Department of Insurance
(800) 927-4357 www.insurance.ca.gov
California Department of Rehabilitation/Greater L.A.
(213) 736-3904 www.rehab.cahwnet.gov
California Department of Social Services
licenses board and care homes
(818) 596-4334 www.ccld.ca.gov
California Nursing Home Administration Program
(916) 552-8780 www.dhs.ca.gov/lnc/NHAP
California Online Voter Registration Form
www.ss.ca.gov/elections/votereg1.html
Center for Health Improvement
(916) 930-9200 www.chipolicy.org
Center for Justice & Advocacy
(212) 267-2801 www.centerjd.org
Center for the Study & Advancement of Disability Policy
(202) 783-5111 www.disabilitypolicycenter.org
Consumer's Union
(415) 431-6747 www.consumersunion.org
Disability Rights Education Defense Fund
(510) 644-2555
Food & Drug Administration
information on medicines and equipment
(888) 463-6332 www.fda.gov
Fornos & Associates
representing people who are injured or disabled with emphasis on access and discrimination issues
(310) 823-5565
The Foundation for Taxpayer & Consumer Rights
(310) 392-0522 www.consumerwatchdog.org
Heimberg Law Group, LLP
The Heimberg Law Group "Protects Your Rights from Their Wrongs" by championing the cause of victims of medical malpractice, life-altering injuries, elder abuse and health fraud, and those injured by medical products and pharmaceuticals
(800) 425-5557 www.heimberglaw.com
Housing Rights Center
(213) 387-8400
Los Angeles City Department of Disability Programs
(213) 485-6334 www.lacity.org/DOD
Medical Board of California
check your doctor's or midwife's record
(916) 263-2382 www.medbd.ca.gov/lookup.html
Office of Fair Housing & Equal Opportunity
investigates housing discrimination & civil rights matters
(213) 894-8000
Quality Check
report card on hospitals, labs and other medical facilities
(630) 792-5000 www.qualitycheck.org
U.S. Dept. of Health & Human Services
Inspector General's hotline for complaints about fraud regarding health & human services; primarily for Medicare & Medi-Cal fraud
(800) 447-8477
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EARLY INTERVENTION RESOURCES
Atwater Park Center
program for children with developmental disabilities, birth to 3 years
(213) 483-3721
Blind Children's Center
school and home-based support services for children with visual impairments, birth through preschool
(323) 664-2153 www.blindchildrenscenter.org/
Casa Colina Children's Services
services for children from birth to 3 years old; outpatient services for children from birth to 15 years old
(909) 596-7733
Center for Prevention & Early Intervention
(800) 869-4337 www.wested.org/cpei
Drew Child Development Corp.
for children with special needs, birth to 3 years
(323) 249-2598 www.drewcdc.org
Early Start/Early Star at Home
infants & toddlers
(916) 654-2773 www.dds.ca.gov/earlystart/
Eisner Pediatric & Family Medical Center
day care center for infants & toddlers with developmental disabilities
(213) 747-5542 www.pedcenter.org
Exceptional Children's Foundation
birth to 3 years of age
(323) 735-1424 www.ecf-la.org
Family Resource Centers Network of California
www.frcnca.org
Infant Family Services Program
birth to 3 years old
(562) 438-8999
mylittlesteps.com
online assessment and teaching program
www.mylittlesteps.com
Pathways Awareness Program
(800) 955-CHILD www.pathwaysawareness.org
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EDUCATION RESOURCES
California School for the Deaf/Riverside
day school and residential for those age 3 to 21 and their families
(951) 782-6500 www.csdf.k12.ca.us
Coalition of Special Education Parents
for parents of children receiving special education services under IDEA in preschool through high school
www.groups.yahoo.com/group/COSEP/
Council for American Private Education
(301) 916-8460 www.capenet.org
Educational Resources Information Center
searchable Internet database
(800) LET-ERIC www.eric.ed.gov
Heath Resource Center
clearinghouse on higher education for individuals with disabilities
(800) 544-3284 www.heath.gwu.edu
Homeschool.com
www.homeschool.com
Home School Zone
www.homeschoolzone.com
L.A. County Office of Education, Special Education
coordinates county division of special schools, classes & programs
(562) 803-8306 www.lacoe.edu
L.A. Trade Technical College
programs & services for students with disabilities
(213) 763-3773 www.lattc.cc.ca.us
National Home Education Network
www.nhen.org
Office of Special Education & Rehabilitative Services, U.S. Department of Education
(800) 872-5327 www.ed.gov/about/offices/list/osers/index.html
The Special Education Home Page
links to just about every disability-related education source online
www.specialed.freeyellow.com
The Special Education Muckraker
www.specialeducationmuckraker.com
Villa Esperanza Services
day school for children with disabilities, 3 months to 15 years
(626) 449-2919 www.villaesperanzaservices.org
Kids on the Block
brings disability awareness alive and to the forefront in schools and in community groups through puppet shows
(800) 368-KIDS www.kotb.com
Rick Hansen Man in Motion Foundation
lesson plans for disability awareness in grades 4-8
www.rickhansen.com/index.php?option=com_content&task=view&id=56&Itemid=84
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EMPLOYMENT
AbilityFirst/Adult Vocational Services
sheltered workshops
(213) 748-7309 www.abilityfirst.org
Asian Pacific Community Services
(818) 997-0819
Best Buddies/L.A.
(310) 253-5470 www.bestbuddies.org
Department of Rehabilitation
(213) 736-3904 www.dor.ca.gov
Disabled Businesspersons Association
(619) 594-8805 www.disabledbusiness.com
Diversity World
links to career development information, scholarships and internships
www.diversityworld.com
Employment & Disability Institute
(607) 255-2891 www.edi.cornell.edu
Governor's (CA) Committee on Employment of People with Disabilities
(916) 654-8055 www.edd.ca.gov/gcepdind.asp
Job Accommodation Network
(800) 526-7234 www.jan.wvu.edu
Plan for Achieving Self-Support
work incentive program for people on SSI and/or SSDI
(800) 772-1213
Regional Disability & Business Technical Assistance Centers
(800) 949-4232
SEED Business Network
provides resources & consulting services for people with disabilities who are starting or running a small business
(949) 499-4223 www.biznet.org
Westview Services, Inc.
helps people with disabilities realize their potential; offices throughout Southern California
(714) 517-6606 www.westviewservices.org
Workforce Recruitment Program for College Students with Disabilities
provides summer work experience and full-time employment
(866) 633-7365
Work World
software for personal computers for people with disabilities and others to find employment through federal and state work incentives and benefits (publication - free)
www.workworld.org
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EXERCISE EQUIPMENT
Flexiciser International
fitness for the mobility-challenged
(888) FLEX INC www.flexiciser.com
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FAMILY RESOURCES
Achievable Foundation
bridges the gap between the resources needed and the financial challenges of the disability community
(310) 258-4156 www.achievable.org
Family Fun
family fun and health information to improve family living
www.specialneedsfamilyfun.com
Family Care Agency
respite care provided to families who have a family member with a disability at home
(818) 345-2950
Family Resource Centers of Los Angeles
(213) 763-7800 www.csun.edu/~ffrc/FRC_LA.htm
The Fathers Network
www.fathersnetwork.org
Fiesta Educativa
information, education, training & referral services
(323) 221-6696 www.fiestaeducativa.org
Genetically Handicapped Persons Program
helps pay medical cost of enrolled persons with certain genetic diseases
(800) 639-0597 www.dhs.ca.gov/pcfh/cms/ghpp
GrandsPlace
for grandparents and others raising special kids
www.grandsplace.com
Ideal Lives
a web site for parents and professionals supporting people with special needs with free resources, practical ideas, and answers to questions. Also publishes a downloadable e-book, "The Internet Resource Guide for Parents & Professionals"
www.ideallives.com
The Jeffrey Foundation
family counseling & childcare
(323) 965-7536 www.thejeffreyfoundation.com
Loving Your Disabled Child
support for families of children with disabilities
(323) 299-2925 www.lydc.org
MUMS: National Parent to Parent Network
matches parents by children's diagnosis or by symptoms for undiagnosed disorders to expand parents' choices by connecting them to other parents
(877) 336-5333 www.netnet.net/mums
Parents on Wheels
www.parentsonwheels.com
Shane's Inspiration
for a list of play dates and parks accessible to children of all abilities
(818) 752-5676 www.shanesinspiration.org
Through the Looking Glass
for parents who also have disabilities
(800) 644-2666 www.lookingglass.org
Volunteers of America/L.A.
respite services for families & guardians who care for a child, youth or adult with developmental disabilities who are clients of a regional center
(213) 385-9688 www.voala.org/our_programs/
Wardrobe Wagon
national distributor of special needs clothing and footwear
(800) 992-2737 www.wardrobewagon.com
Disability Resources Monthly Guide to Disability Resources on the Internet
comprehensive listing and reviews of thousands of resources on the Web for every sort of disability
www.disabilityresources.org/
Ronald McDonald Houses
search for Ronald McDonald Houses
www.rmhc.org/search_cm/
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HEALTH & INSURANCE SERVICES
Aiding the Medically Compromised
coordinates dental & medical services
(818) 385-3500
California Children's Services
provides treatment for children with certain physical disabilities and chronic health conditions or diseases
(800) 288-4584 www.dhs.ca.gov/pcfh/cms/ccs/
California Major Risk Medical Insurance Program
alternative insurance program for those who are uninsurable, have pre-existing conditions that companies refuse to insure, or whose insurance options come only with excessively high premiums
(800) 289-6574 www.mrmib.ca.gov
The California Patient's Guide: Your Health Care Rights & Remedies
(publication - free)
(800) 952-5210 www.calpatientguide.org
Center for Health Care Rights
health insurance counseling, especially for L.A. County Medicare eligible
(213) 383-4519 www.healthcarerights.org
Centers for Medicare & Medicaid Services
(877) 267-2323 www.cms.hhs.gov
Department of Insurance
(800) 927-4357 www.insurance.ca.gov
Department of Managed Care
(888) HMO-2219 www.hmohelp.ca.gov
The Discharge Planner
for those needing care but discharged (publication - free)
(909) 656-2943 www.dischargeplanner.net
Family Voices
health care advocacy for children with disabilities
(888) 835-5669 www.familyvoices.org
Health Care Options
joining or leaving a Medi-Cal HMO
(800) 430-4263 www.coverageforall.org/pdf/matrix/CA_Matrix.pdf
Health Choices
information on choosing a health plan
(888) 275-7585 www.healthchoices.org
HealthScope
information on health plans, medical groups, hospitals
(800) 880-5305 www.healthscope.org
HICAP
information, counseling, and advocacy for Medicare members
(800) 434-0222 www.cahealthadvocates.org/
HMO Help Center
information and help for California HMO members
(888) HMO-2219 www.hmohelp.ca.gov
LifeBridge Free Life Insurance Program
through MassMutual for eligible parents of child with disabilities
(800) 272-2216 www.massmutual.com/mmfg/about/lifebridge.html
Medi-Cal Fair Hearing
how to file an appeal if denied needed services
(800) 952-5253 www.dmhc.ca.gov/dmhc_consumer/hp/hp_medical.asp
Medi-Cal Managed Care Ombudsman
help with a problem you can't solve
(888) 452-8609 www.familiesusa.org/resources/
Medicare
information and help with Medicare and nursing home care
(800) 633-4227 www.medicare.gov
National Academy for State Health Policy
(207) 874-6524 www.nashp.org
Office of the Patient Advocate
report cards on California HMOs
(866) 466-8900 www.opa.ca.gov
The Partnership for Prescription Assistance
assistance with applying for public and private prescription assistance
(800) 4PPA-NOW www.pparx.org
State Children's Health Insurance Program
offers health insurance to uninsured low-income children (up to age 19) - even those who can't qualify for Medicaid
(877) KIDS-NOW www.insurekidsnow.gov
State Health Insurance Counseling & Assistance Programs
www.medicare.gov
Families USA
has a nationwide network of member groups to help locate up-to-date loal health care issues and options
(202) 628-3030 www.familiesusa.org
The National Association of State Comprehensive Health Insurance Plans
gathers information about state-sponsored health insurance for children and others with disabilities and/or considered "high risks"
www.naschip.org
Quotesmith Corp.
high-risk pools, small-group plans, specific quotes for private insurance policies, and full marketplace for spectrum of insurance products
(800) 556-9393 www.insure.com
Health Insurance Resource Center
provides information on about 30 different state-specific high-risk insurance programs
www.healthinsurance.org/
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HOUSING, INDEPENDENT LIVING & OTHER SITUATIONS
Independent Living Research & Utilization Program
provides research, education, consultation in ADA, independent living, home-based services, and health issues affecting people with disabilities
(713) 520-0232 www.ilru.org/
California Foundation for Independent Living Centers
(916) 325-1690 www.cfilc.org
California State Independent Living Council
(916) 445-0142 www.calsilc.org
California Registry
information on hospice and long-term care
(800) 777-7575 www.calregistry.com
Children's Hospice International
(800) 2-4-CHILD www.chionline.org
CHOICESS
dedicated to improving and increasing the ability of persons with developmental disabilities to choose and live in their own homes or apartments, have profitable jobs, develop friendships and participate in the community.
(626) 447-5477 www.choicess.com
Fannie Mae, Western Regional Office
housing loans for people with disabilities
(626) 396-5100 www.fanniemae.com
Grants for Ramps
grants for exterior accessibility for renters with disabilities
(916) 327-3646 www.hcd.ca.gov/fa/eagr/
Homeowner/Renter Assistance/California Franchise Tax Board
for those age 62 or older, blind or disabled with low incomes
(800) 852-5711 www.ftb.ca.gov/individuals/hra/index.html
Independent Living Center of Southern California
(818) 785-6934 www.ilcsc.org
Lanterman Developmental Center
900-bed state residential facility
(909) 595-1221 www.dds.ca.gov/Lanterman/Index.cfm
Living Independently in Los Angeles
online database of resources
www.lila.ucla.edu
Los Angeles Accessible Apartments
(818) 782-2211
National Accessible Apartment Clearinghouse
(800) 421-1221 www.accessibleapartments.org/website/article.asp?id=4
National Resource Center on Supportive Housing & Home Modification
includes nationwide directory of funding agencies
(213) 740-1364 www.homemods.org
U.S. Dept. of Housing/Urban Development
list of subsidized rental housing
(213) 894-8000
Westside Center for Independent Living
(310) 390-3611 www.wcil.org
Wheelchair Accessible Home Clearinghouse
sellers list accessible houses and prospective buyers can search for houses; list of realtors specializing in accessible housing
www.waccess.org
Villa Esperanza Services
(626) 449-2919 www.villaesperanzaservices.org
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LEGAL - PUBLIC & PRIVATE
AdvocateWeb
for those exploited by trusted helping professionals
www.advocateweb.org
Bet Tzedek Legal Services
(323) 939-0506 www.bettzedek.org
Cancer Legal Resource Center - LLS
(866) 843-2572 www.lls.edu/academics/candp/clrc.html
Disability Mediation Center - LLS
(213) 736-1000 www.lls.edu/academics/candp/dmc.html
Disability Rights Advocates
health care rights for people with disabilities
(888) 926-0274 www.dralegal.org
Fornos & Associates
representing those who are injured and/or disabled with emphasis on access and discrimination issues
Heimberg Law Group, LLP
The Heimberg Law Group "Protects Your Rights from Their Wrongs" by championing the cause of victims of medical malpractice, life-altering injuries, elder abuse and health fraud, and those injured by medical products and pharmaceuticals
(800) 425-5557 www.heimberglaw.com
Public Counsel
(213) 385-2977 www.publiccounsel.org
Protection & Advocacy
legal advocacy for people with disabilities
(800) 776-5746 www.pai-ca.org
Western Law Center for Disability Rights
(213) 736-1031 www.wlcdr.org
Disability Rights Education & Defense Fund
parent advocacy training, litigation, public policy reform, and more
(510) 644-2555 www.dredf.org
National Disability Rights Network
protection and advocacy
(202) 408-9514 www.napas.org
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LISTSERVS, BULLETIN BOARDS, ONLINE COMMUNITIES, BLOGS
Arc of the United States Discussion Boards
many topics around the theme of developmental disability
www.thearc.org/NetCommunity/Page.aspx?&pid=205&srcid=328
Birth to Three Support
supporting parents and professionals in their handling of early intervention programs for children of any diagnosis or "at-risk" situation
www.groups.yahoo.com/group/BirthtoThreeSupport/
CareCure Community
information on health, care, travel, relationships for those who have spinal cord injuries
www.sciwire.com
Childdevdelays
for parents of children with developmental delays: speech and language, motor, cognitive, sensory, social and physical
www.groups.yahoo.com/group/childdevdelays/
CIHear
for those with or considering cochlear implants
www.groups.yahoo.com/group/CIHear/
Closing the Gap Forums
click on "Featured Discussions"
www.closingthegap.com/forums
Coalition of Special Education Parents
for parents of children receiving special education services under IDEA in preschool through high school
www.groups.yahoo.com/group/COSEP/
ConductDisorder.com
for the battle-weary parent with a challenging child with special needs who needs a soft place to land
www.conductdisorders.com
Cripworld
www.cripworld.com
Dr. Mac's Behavior Management Advice Site
advice offered on a bulletin board
www.BehaviorAdvisor.com
HealingWell.com
offers a variety of groups on a variety of special needs, such as asthma and allergies, multiple sclerosis, ostomies, diabetes and more
www.healingwell.com/community/
Mommy Tips
www.mommytips.com
SID-DSI_AllAboutKids
group for parents of children with Sensory Processing Disorder
www.groups.yahoo.com/group/SID-DSI_AllAboutKids/
The Transverse Myelitis Internet Club
www.myelitis.org/tmic
Mamasource: Connecting Moms in Your Community
an online community that connects you with "moms" (parents) in your community, where you can ask questions, get referrals, and research topics of interest to you
www.mamasource.com
WheelchairJunkie.com
www.wheelchairJunkie.com
Yahoo
a variety of discussion groups for various disabilities and issues
www.yahoo.com/Society_and_Culture/Disabilities/
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MEDICAL RESOURCES
The Childbirth Connection Inc.
training & support to pregnant women who are physically and/or developmentally disabled
(818) 734-0723
American College of Surgeons
information about common operations
www.facs.org
Lab Tests Online
information about lab tests
www.labtestsonline.org
National Institute of Health
health information
www.health.nih.gov
Medical Board of California
(916) 263-2382 www.medbd.ca.gov/lookup.html
PubMed
National Library of Medicine
www.ncbi.nlm.nih.gov/entrez/query.fcgi
Sexual Health Network
www.sexualhealth.com/channel.php?Action=view&channel=3
Women with Disabilities Resource Center
information on health issues
(800) 994-WOMAN www.4woman.gov
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MOBILITY RESOURCES
1-800-Wheelchair
wheelchair's org
www.1800wheelchair.com
Allegro Medical
medical supplies, wheelchairs, scooters, personal care & more
www.allegromedical.com
Bruno Independent Living Aids
stair lifts
(800) 882-8183 www.bruno.com
Columbia Medical Mfg.
bathing, mobility, exercise & specialty wheelchairs
(800) 454-6612 www.columbiamedical.com
DiscountRamps.com
www.discountramps.com
Freedom Designs
seating/positioning products & wheelchairs
(800) 331-8551 www.freedomdesigns.com
GrabBars.com
www.grabbars.com
HealthCraft Products
standing & transfer support products
(888) 619-9992 www.healthcraftproducts.com
Invacare
beds & bed-related products, lifts & slings, seating & positioning, respiratory, therapeutic support surfaces, patient care, wheelchairs & more
(800) 333-6900 www.invacare.com
Life with Ease
online store
www.lifewithease.com
Mobile Help
assists those who need wheelchairs, van conversions, electric scooters, mini vans, lift chairs and other driving aids
(800) 454-3862
Mobility Management
(publication - free)
(972) 687-6700 www.mobilitymgmt.com
Mobility Unlimited
assists adults with physical disabilities who have exhausted all other financial sources for mobility needs
(877) 516-0605 www.mobilityunlimited.org
National Mobility Equipment Dealers Association
(800) 833-0427 www.nmeda.org
New Mobility Magazine
online and print magazine (publication - fee)
www.newmobility.com
Permobil USA
powered wheelchairs
(800) 736-0925 www.permobilusa.com
Pride Mobility Products
powered wheelchairs, scooters & lift chairs
(800) 800-8586 www.pridemobility.com
Smart Home
www.smarthome.com
Snug Seat
standers, pediatric wheelchairs, gait training & hygiene products
(800) 336-7684 www.snugseat.com
SpinLife
products in motion
www.spinlife.com
Sunrise Medical
wheelchairs, scooters, walking aids, oxygen therapy, lifts, daily living products, beds, mattresses & positioners & more
(800) 333-4000 www.sunrisemedical.com
Sure-lok Inc.
wheelchair restraint systems
(800) 866-0004 www.sure-lok.com
Tumble Forms Carrie Seat
standers, scooters, trays & worktables, push chairs, sensory integration, toileting & therapy rolls
www.tumbleforms.com
Universal Medical
bath products, wheelchairs, scooters, walkers, canes, pressure cushions, hygiene products
(888) 864.6331 www.uni-medical.com
Wheels for Humanity
(818) 766-8000 www.wheelsforhumanity.org
Xtreme Medical Inc.
wheelchairs, rehabilitation equipment, urological supplies, and disability-related equipment
(562) 803-9444 www.xtrememedical.com
X10.com
safety and lighting products for the home
www.X10.com
The Landeez All-Terrain Wheelchair
for children and adults
(800) 411-7789 www.landeez.com
Redman Power Chair
including lateral supports and positioning devices
(800) 727-6684 www.redmanpowerchair.com
TiLite
titanium wheelchairs that are light and hand-crafted
(800) 545-2266 www.tilite.com
Freedom Concepts
customized three-wheeled bikes for children and adults with disabilities
(800) 661-9915 www.freedomconcepts.com
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PARKS & RECREATION
USTA Wheelchair Tennis
(714) 361-3663 www.usta.com/playnow/wheelchair/default.sps
Tools & Resources for People of All Ages, Rev. 4th ed.
(publication - fee)
(800) 266-5592 www.hunterhouse.com
Ability First/Camps
residential camping for children & adults with physical and developmental disabilities
(626) 396-1010
Access to Sailing
(562) 433-0561 www.accesstosailing.org
Adaptive Adventures
listings by state and sports
(877) 679-2770 www.adaptiveadventures.org
Ahead with Horses
(818) 767-6373
Alisa Ann Ruch Burn Foundation
resident co-ed camp for children with burn injuries, ages 5 to 18
(818) 249-2230 www.aarbf.org
American Wheelchair Bowling Association
(954) 491-2886 www.awba.org
Athletes Helping Athletes
provides adaptive athletic equipment and hand-cycles
(888) 566-5221 www.roadrunnersports.com/cgi-bin/rrs/aha/ahaHome.jsp
Bear Mountain Ski Resort, California Handicapped Skiers
(909) 585-2519, www.bearmtn.com
Cali-Camp - summer camp for children with disabilities
(310) 455-0404 www.calicamp.com
Camp Bloomfield
for infants, children & teens who are blind or visual impairments, up to age 21, and their families
(323) 295-4555
Carousel Horse Therapy
(661) 252-7333 www.carouselranch.org
Don Krebs' Access to Recreation
adaptive recreation equipment for those who have physical disabilities (catalogue - free)
(800) 634-4351 www.AccessTR.com
Easter Seals/So Calif. Residential Camp Program
(909) 888-4125
Fishing Has No Boundaries
(800) 243-3462 www.fhnbinc.org
Handicapped Scuba Association International
(800) 673-4540 www.hsascuba.com/
Kids' Camp
national directory of camps for children with disabilities
www.kidscamps.com
L.A. City Recreation & Parks
programs for people, ages 2fi to adult, of all abilities
(323) 226-1402 www.laparks.org
Mammoth Mountain Ski Area & Resort
(888) 462-6668 www.mammoth-mtn.com/
National Center on Physical Activity & Disability
(800) 900-8086 www.ncpad.org
National Disability Sports Alliance
(401) 792-7130 www.ndsaonline.org
The National Handicap Motorcyclist Association
(212) 242-3376
Outdoor Adventures
(909) 596-7733, www.casacolina.org
Power Soccer USA
soccer for those in power wheelchairs
www.powersoccerusa.net/
Prairie Creek Redwoods State Park
11-mile barrier free trail, accessible campsites
(707) 464-6101 www.parks.ca.gov
Ride On Therapeutic Horsemanship
www.RideOn.org
Shane's Inspiration
for a list of parks accessible to children of all abilities
(818) 752-5676 www.shanesinspiration.org
Special Equestrian Riding Therapy
(818) 776-6476 www.sert.org/main.html
Special Olympics California (South)
(310) 215-8380 www.specialolympics.org
Sports 'N Spokes
magazine for wheelchair sports and recreation (publication - fee)
(602) 224-0500, www.sportsnspokes.com
Squaw Valley USA
(888) 766-0321 www.squaw.com
Tahoe Adaptive Ski School at Alpine Meadows
(530) 581-4161 www.dsusafw.org
U.S. Adaptive Recreation Center
(909) 584-0269 www.usarc.org
Yogability Institute
private & group yoga classes for people with disabilities
(310) 358-3338 www.yogability.org
P.E. Central
for good adaptive P.E. resources
www.pecentral.org/adapted/adaptedmenu.html
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PUBLICATIONS, RESOURCES & EVENTS
360 Magazine
ezine that challenges the traditional view of those in wheelchairs
www.360mag.com
Abilities Expo
annual tradeshow and conference
(877) 923-3976 www.abilitiesexpo.com
Accessible Air Travel
(publication - free)
(800) 444-0120
Access Amtrak
(publication - free)
(877) 268-7252
Audacity Magazine
the disabled magazine for the abled mind
www.audacitymagazine.com
Braille Institute Library Services
designated by the Library of Congress as the South California Regional Library & Machine Lending Agency for those who are blind, physically disabled and/or reading disabled
(800) 808-2555 www.braillelibrary.org
A Consumer Guide to Handling Disputes with Your Employer or Private Health Plan, 2005 Update
(publication - free)
www.kff.org/consumerguide/7350.cfm
California Department of Developmental Services, Regional Centers
www.dds.ca.gov/
The California Patient's Guide: Your Health Care Rights & Remedies
(publication - free)
(800) 952-5210 www.calpatientguide.org
Children with Cerebral Palsy: A Parents' Guide
covers practicalities of living day-to-day with CP (publication - fee)
(800) 843-7323 www.woodbinehouse.com
Clearinghouse on Aging and Developmental Disabilities
www.uic.edu/orgs/rrtcamr/clearinghouse.htm
Computer Resources for People with Disabilities: A Guide to Assistive Technologies, Disability Resou
information for, by, and about people with disabilities
(800) 272-771 www.healthcare.uiowa.edu/cdd/multiple/drl/drl.asp
Disabled Dealer
monthly magazine of services and products (publication - fee)
(800) 588-5099 www.disableddealer.com
Disability Etiquette
downloadable guide published by the United Spinal Association (publication - free)
(800) 807-0192 www.unitedspinal.org
Disability World
bimonthly web-zine
www.disabilityworld.org
The Disability Resources Monthly
guide to resources on the net
www.disabilityresources.org
The Discharge Planner
for those needing care but discharged (publication - free)
(909) 656-2943 www.dischargeplanner.net
Discovering People on Wheels
Teacher's Package, comes with 35 coloring books & a resource guide (publication - fee)
(215) 581-0709 www.inglis.org
Enabling Romance: A Guide to Love, Sex & Relationships for People with Disabilities
(publication - fee)
(888) 850-0344, www.newmobility.com/bookstore-romance.cfm
Exceptional Parent
monthly magazine (publication - fee)
(877) 372-7368 www.eparent.com
Exceptional Parent Annual Resource Guide
organizations, associations, products and services (publication - fee)
(800) 535-1910 www.eplibrary.com
Exceptional Parent Library
books in all categories and for all age groups
(800) 535-1910 www.eplibrary.com
Health, Wellness & Aging with Disability
96-page book by former executive director of the Westside Center for
(310) 827-0269 www.jik.com/index.html
Independent Living
(publication - fee)
(310) 827-0269 www.jik.com/index.html
Kids on Wheels: A Young Person's Guide to Wheelchair Lifestyle
two volume resource guide: one for young people and one for parents, teachers and professionals (publication - fee)
(888) 850-0344, www.kidsonwheels.us
Living Independently in Los Angeles
online database of resources
www.lila.ucla.edu
Meals for Easy Swallowing
125-page recipe book (online only)
www.mdausa.org/publications/meals
Med-Sell
buy and sell used medical equipment and find accessible housing
www.disabilityonline.com/categories/daily_living_products/used_equipment
Mobility Management
(publication - free)
(972) 687-6700 www.mobilitymgmt.com
Mother to Be
(publication - fee)
(800) 333-6867 books@specialneeds.com
National Information Center for Children & Youth with Disabilities
(800) 695-0285 www.nichcy.org
New Horizons: Information for the Air Traveler with a Disability
(publication - free)
(888) 860-7244
New Mobility Magazine
online and print magazine (publication - fee)
www.newmobility.com
Orchid Magazine
for women with disabilities
www.fpg.unc.edu/~ncodh/orchid
Paralinks Electronic Magazine
online for people with spinal cord injuries
www.paralinks.net/index.html
Paralysis Resource Guide
(publication - free)
(800) 539-7309 www.paralysis.org
Planning for Your Special Needs Child
(publication - free)
(888) 878-3256 www.metlife.com/Applications/Corporate/WPS/CDA/PageGenerator/0,1674,P1265,00.html
Ragged Edge Online
online magazine
www.ragged-edge-mag.com
Rainbow Resource Guide
comprehensive guides to all social services; available by county (publication - fee)
(310) 834-4000 www.resourcedirectory.com
Resources for People with Disabilities: A National Directory
(publication - fee)
(800) 306-9941 www.fergpubco.com
SCI Info-Pages
www.sci-info-pages.com
SCI Video Access
a lending program of informational videos
(800) 548-2673 www.spinalcordinjury.org/services.htm#Video
The Sex Information & Education Council of the United States
bibliography of every type of printed or online material in every category regarding sex and those who are disabled
(212) 819-9776 www.siecus.org
Special Education Mediation: A Guide for Parents
downloadable brochure by the National Center on Dispute Resolution and the Technical Assistance Alliance for Parent Centers
www.directionservice.org/cadre/pdf/ParentGuide.pdf
Spinal Network: The Total Wheelchair Resource Book
for adults and older teens
(888) 850-0344 www.spinalnetwork.net
Sports 'N Spokes
magazine for wheelchair sports and recreation (publication - fee)
(602) 224-0500, www.sportsnspokes.com
Technology & Persons with Disabilities Conference
annual, in Los Angeles
(818) 677-2684 www.csun.edu/cod
Tools & Resources for People of All Ages, Rev. 4th ed.
(publication - fee)
(800) 266-5592 www.hunterhouse.com
Traumatic Brain Injury National Data Center
www.tbindsc.org/
A Wheelchair Rider's Guide to the Los Angeles & Orange County Coast
(publication - free)
(510) 286-0933
Woodbine House
books on disabilities for parents, children, teachers, and professionals
(800) 843-7323 www.woodbinehouse.com
World Congress & Exposition on Disabilities
conference and tradeshow
www.wcdexpo.com/2008/index.cfm
Disabilities, Dragons and Other Magical Discoveries: A Kid's Guide to Understanding and Living with
a book by Rick Enright that will make kids laugh while they learn
www.tvcc.on.ca/disabilities-dragons.htm
Caution: Do Not Open Until Puberty!
a book by Rick Enright designed to act as an ice-breaker regarding sexuality discussions with teens who have disabilities
(519) 685-8703. www.tvcc.on.ca/caution-do-not-open-until-puberty.htm
Home Education Magazine
(800) 236-3278 www.home-ed-magazine.com
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REGIONAL CENTERS
Eastern Los Angeles Regional Center
eastern L.A. County, including Alhambra & Whittier
(562) 299-4700 www.elarc.org
Frank D. Lanterman Regional Center
central L.A. County, including Pasadena, Glendale & Burbank
(213) 383-1300 www.lanterman.org
Harbor Regional Center
southern L.A. County, including Bellflower, Harbor, Long Beach & Torrance
(310) 540-1711 www.harborrc.org
Inland Regional Center
Riverside & San Bernardino counties
(909) 890-3001 www.inlandrc.org
North Los Angeles County Regional Center
northern L.A. County, including San Fernando & Antelope valleys
(818) 788-1900 www.nlacrc.org
Regional Center of Orange County
Orange County
(714) 796-5100 www.rcocdd.com/
San Gabriel/Pomona Regional Center
eastern L.A. County, including El Monte, Monrovia, Pomona & Glendora
(909) 620-7722 www.sgprc.org
South Central Los Angeles Regional Center
southern L.A. County, including Gardena & Compton
(213) 763-7800 www.sclarc.org
Tri-Counties Regional Center
Ventura, Santa Barbara & San Luis Obispo counties
(805) 962-7881 www.tri-counties.org
Westside Regional Center
western L.A. County, including Culver City, Inglewood & Santa Monica
(310) 258-4000 www.westsiderc.org
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REHABILITATION
Asian Rehabilitation Services, Inc.
(213) 743-9242 www.asianrehab.org
Casa Colina Centers for Rehabilitation
(909) 596-7733 www.casacolina.org
Center for Cerebral Palsy at UCLA
interdisciplinary clinic for the medical management of movement disorders in children and adults with CP
(310) 825-5858
Center for Diagnostic & Rehabilitation Medicine, Daniel Freeman Memorial Hospital
(310) 674-7050
Childrens Hospital Los Angeles
(323) 660-2450 www.childrenshospitalla.org
Head Injury Rehabilitation Services
(800) 705-4477
Memorial Rehabilitation Hospital
(562) 933-9000 www.memorialcare.org
National Rehabilitation Information Center
(800) 346-2742 www.naric.com
Northridge Hospital Medical Center
(818) 885-5334
Orthopaedic Hospital L.A.
provides orthopedic care for children under 18 years regardless of ability to pay
(213) 742-1300 www.orthohospital.org
The Petrofsky Center for Rehabilitation & Research
functional electrical stimulation for spinal cord injuries
(714) 508-3960
Rancho Los Amigos Medical Center
(800) 426-4467 www.rancho.org
Rehabilitation Engineering & Assistive Technology Society of North America
(703) 524-6686 www.resna.org
The Rehabilitation Institute at Santa Barbara
(800) 350-3788
Rehab Institute of Southern California
for all ages who are physically disabled
(714) 633-7400 www.rio-rehab.com
Rehabilitation International
(212) 420-1500 www.rehab-international.org
Shriner's Hospitals for Children - Los Angeles
a network of pediatric specialty hospitals that do not accept payment for excellent services
(213) 388-3151 www.shrinershq.org
St. Jude Medical Center - Fullerton
(714) 871-3280 www.stjudemedicalcenter.org
VA Medical Center, Long Beach
(562) 494-2611
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SUPPORT GROUPS
most national associations have local chapters, which
can provide you access to local support and resources. Request a contact to the local chapter when you call, or look for the link to a local chapter when you view a national association's web site.
If there isn't a support group in your area or around your issue of concern,
consider beginning your own parent support group. Parent to Parent of Pennsylvania provides an online guide that goes through all the basics of starting and running a parent support group
www.parenttoparent.org/Sup-run-t.htm
For tips on how to keep your meetings flowing see, "Facilitation: The Importance of Managing Group Meetings."
www.nacac.org.pg_facilitation.html
Alzheimer's Association
(800) 272-3900
www.alz.org
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The Amputee Coalition of America
(888) 267-5669
www.amputee-coalition.org
The Barr/United Amputee Assistance Fund
(407) 678-2920
www.oandp.com/organiza/uasa/index.htm
Functional Amputee Support Team
(714) 284-5566
Mutual Amputee Aid Foundation
provides peer-support and educational and networking support
(877) 999-6223
www.maafamputee.org/
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American Speech - Language - Hearing Association
(800) 498-2071
www.asha.org
California Deaf - Blind Services
(800) 822-7884
www.sfsu.edu/~cadbs
CI Hear
web site for those considering or who have had a cochlear implant
www.cihear.com
Dial-A-Hearing Screening Test
(800) 222-3277
Greater L.A. Agency on Deafness (GLAD)
(323) 478-8000
www.gladinc.org
Hearing Aid Helpline
(800) 521-5247
Hear Now
hearing aids for people with hearing impairments who do not have the financial resources to purchase these devices
(800) 648-4327
Hope for Hearing Foundation
(310) 410-0900
www.hope4hearing.org
International Hearing Aid Services
information, referrals& a hearing aid assistance program through the Starkey Foundation
(323) 588-0742
John Tracy Clinic
serving children ages birth to 5 years old
(800) 522-4582
www.johntracyclinic.org
L.A. County Deaf Information
(800) 660-4026
S.E.E. Center
promotes early identification of hearing problems
(562) 430-1467
www.seecenter.org
Self-Help for Hard of Hearing People
(909) 849-9315
www.hearingloss.org
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Birth Defect Research for Children
(407) 895-0802
www.birthdefects.org
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American Heart Association
(800) 242-8721
www.americanheart.org
American Lung Association
(800) 548-8252
www.lungusa.org
Stroke Association of Southern California
(310) 575-1699
www.strokesocal.org
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National Hemophilia Foundation
(800) 42-HANDI
www.hemophila.org
Children's PKU Network
(800) 377-6677
www.pkunetwork.org
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The Cleft Palate Association
(800) 24- CLEFT
www.cleftline.org
FACES - The National Craniofacial Association
(800) 332-2373
www.faces-cranio.org
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AbilityFirst
(626) 396-1010
www.abilityfirst.org
Autism Society of America
(301) 657-0881
www.autism-society.org
Council for Exceptional Children
(888) 232-7733
www.cec.sped.org
Easter Seals
(800) 221-6827
www.easterseals.com
Genetic Alliance
(800) 336-GENE
www.geneticalliance.org
Hydrocephalus Association
(888) 598-3789
www.hydroassoc.org
March of Dimes Birth Defects Foundation
(212) 353-8353
www.modimes.org
The National Association for the Dually Diagnosed
(800) 331-5362
www.thenadd.org
TASH (formerly the Association for the Severely Handicapped
(410) 828-8274
www.tash.org
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American Diabetes Association
(703) 549-1500
www.diabetes.org
P.A.D.R.E. Foundation
support groups for kids & adolescents
(714) 532-8330
www.padrefoundation.org
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A Handicapped Help Line
(888) 820-4357
www.ahandicappedhelpline.org
Info Line of Los Angeles
(213) 686-0950
National Spinal Cord Injury Hotline - 9 a.m. - 5 p.m. EST
(800) 526-3456
scihotline@aol.com
Suicide Prevention Center - open 24/7
(877) 727-4747
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United Cerebral Palsy
national organization with a network of local affiliates
(800) 872-5827
www.ucp.org
American Academy for Cerebral Palsy & Developmental Medicine
targets medical professionals but good source of info
(847) 698-1635
www.aapdm.org
The Cerebral Palsy Center
known for its spasticity management program using rhizotomy
(800) 678-KIDS
www.stlouischildrens.org/tabid/89/itemid/1539/Cerebral-Palsy-Spasticity--Selective-Dorsal-Rhiz.aspx
Center for Cerebral Palsy at UCLA
interdisciplinary clinic for medical management
(310) 825-5858
The Undersea & Hyperbaric Medical Society
provides information to "improve the scientific basis for hyperbaric oxygen therapy"
(301) 942-2980
www.uhms.org
Muscular Dystrophy Association
offers resources, clinical referrals and information
(800) 572-1717
www.mdausa.org
Muscular Dystrophy Family Foundation
provides adaptive equipment and support to those affected by one of more than 40 neuromuscular diseases
(800) 544-1213
www.mdff.org
Parent Project Muscular Dystrophy
particularly focused on Duchenne and Becker muscular dystrophy
(800) 714-5437
www.parentprojectmd.org
Families of Spinal Muscular Atrophy
raises funds to promote reserach as to causes and treatments
(800) 886-1762
www.fsma.org
National Multiple Sclerosis Society
information on living with MS, treatment, scientific progress, clinical research, MS specialty centers, and local chapters
(800) 344-4867
www.nationalmssociety.org
Multiple Sclerosis Complementary & Alternative Medicine
online community that reviews complementary and alternative medicine therapies
www.ms-cam.org
The National Pediatric MS Center
supports multi-disciplinary clinical care and scientific research of children and adolescents with MS
(631) 444-7802
www.pediatricmscenter.org
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National Kidney Foundation
(800) 622-9010
www.kidney.org
American Liver Foundation, Greater L.A. Chapter
(800) GO LIVER
www.liver411.org
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United Ostomy Association
(800) 826-0826
www.uoa.org
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American Chronic Pain Association
(800) 533-3231
www.theacpa.org
American Pain Foundation
(888) 615-PAIN
www.painfoundation.org
National Foundation for the Treatment of Pain
(831) 655-8812
www.paincare.org
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American Speech - Language - Hearing Association
(800) 498-2071
www.asha.org
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American Paraplegia Society
(718) 803-3782
www.apssci.org
American Spinal Injury Association
(312) 238-6207
www.asia-spinalinjury.org
Craig Hospital's Research Department - mostly free
publications on staying healthy after SCI
(303) 789-8202
www.craighospital.org
Christopher & Dana Reeve Paralysis Resource Center
(800) 539-7309
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